CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 276 - 300 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53657	C53657	Test of Everyday Attention for Children (TEA-Ch) - Map mission percentage value	Value of Mission Map percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53623	C53623	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score deviation from first count	Count of the Sky Search attention score difference from First (Version A) count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1305-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F1968-C56424	C56424	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension IQ composite score	The subject's Verbal Comprehension IQ composite score, converted from his/her Verbal Comprehension T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12787	C12787	Gene variant mutation category	Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3053-C59182	C59182	Acetabular index left measurement	The measurement in degrees of the left acetabular index	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59210	C59210	Surgery procedure anterior hemi epiphyseodesis left knee type	Type of anterior hemi-epiphyseodesis surgical procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58471	C58471	ADL device use indicator	Indicator of whether the participant/subject uses any ADL (activities of daily living) devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59272	C59272	Surgery procedure psoas lengthen open left hip anatomic site other text	The free-text field related to "Surgery procedure psoas lengthen open left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2814-C58675	C58675	Respiratory ventilation support assist other type text	Text describing another type of respiratory ventilation or support assist used by participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2203-C18961	C18961	Genetic disorder other text	The free-text field related to 'Genetic disorder type' specifying other text. Whether the participant/subject has a known single gene disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2016-C56291	C56291	NIH Toolbox Cognitive Cognition early childhood composite unadjusted scale score	The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2235-C54630	C54630	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2203-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53669	C53669	Test of Everyday Attention for Children (TEA-Ch) - Score dual task deviation from first count	Count of the Score dual task difference from First (Version A) Score dual task count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53631	C53631	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct count	Count of Creature Counting total correct as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1305-C14706	C14706	Berg Balance Scale (BBS) - scale total score	The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F1968-C56433	C56433	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval upper bound value	The upper bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12795	C12795	Gene coding region sequenced indicator	Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2200-C22598	C22598	Therapist count	The number of therapists participating in the treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3050-C59218	C59218	Surgery procedure distal femoral extension osteotomy right knee type	Type of distal femoral extension osteotomy surgical procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58479	C58479	Orthosis laterality type	Laterality type of orthoses used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.