CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1305-C14705	C14705	Berg Balance Scale (BBS) - unsupport stand front foot scale	The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2015-C53702	C53702	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time value	Value of the total time (seconds) taken to complete the Same World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12794	C12794	Gene promoter deletion indicator	Whether known gene promoters were deleted	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59296	C59296	Surgery procedure open reduction left hip perform type	Type of the surgical open reduction procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59443	C59443	Passive range motion knee joint left side Ely Test measurement value	Value of the left side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F3052-C59256	C59256	Surgery procedure adductor lengthen open hip laterality type	Laterality type relative to the hip open surgical adductor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2200-C22630	C22630	Speech language pathology focus area intervention duration	The duration of each focus area intervention in minutes, as part of the patient or client's speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22879	C22879	Imaging brain other atrophy diagnosis indicator	The indicator related to brain other region atrophy being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58658	C58658	Monoplegia laterality type	Monoplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56309	C56309	NIH Toolbox Cognitive Flanker inhibitory control and attention age 3 up raw score	The raw score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17474	C17474	Cardiovascular history cardiac surgery indicator	Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53710	C53710	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time percentage value	Value of the Opposite Worlds Opposite World total time percentile band value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C12803	C12803	Gene variant mutation implications confirmed mRNA analysis indicator	Indicator of whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59304	C59304	Surgery procedure proximal femoral resection left hip anatomic site other text	The free-text field related to "Surgery procedure proximal femoral resection left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59451	C59451	Passive range motion ankle joint right side knee extend dorsiflexion measurement value	Value of the right side ankle joint dorsiflexion with knee extended passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C12686	C12686	Orthosis type use indicator	Indicator whether the participant/subject currently uses the selected types of orthosis	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59264	C59264	Surgery procedure psoas lengthen percutaneous hip laterality type	Laterality type relative to the hip surgical psoas lengthening percutaneous procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22894	C22894	Corpus callosum anterior status	The status related to anterior median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C17483	C17483	Psychiatric history clinical anxiety diagnosis indicator	Indicator as to whether the participant/subject has had an anxiety diagnosis	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C01014	C01014	Physical exam abnormality significance type	An indication if the physical exam abnormality in a specific body system is clinically significant	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C54618	C54618	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index raw score	Raw score of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.