CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2291-C18949	C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59244	C59244	Surgery procedure rectus femoris release transfer right knee anatomic site	The free-text field related to the location of the right knee surgical rectus femoris release transfer procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58504	C58504	Speak communication device type	Type for all speaking communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2290-C22618	C22618	Therapy session minute duration	The duration of the patient or client's treatment session in minutes	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F1046-C12792	C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C14433	C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22478	C22478	Attention deficit hyperactivity disorder indicator	The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2289-C22865	C22865	Reader initial text	The free-text field related to the initials of the reader	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2198-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2203-C17461	C17461	Cancer history type text	Text description of the type of cancer the participant/subject was or is diagnosed with	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53717	C53717	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct B score	B Score of the Code transmission number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53642	C53642	Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score deviation excess five percent cutoff count	Count of the Creature Counting timing score difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59358	C59358	Surgery procedure tibial derotational osteotomy internal left ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22843	C22843	Modified Ashworth Scale - Limb tone testing right fingers scale	The scale of limb tone testing for the right fingers, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09585	C09585	Brief Pain Inventory (BPI) - pain walking ability interference scale	Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59318	C59318	Surgery procedure achilles tendon lengthen left ankle type	Type of achilles tendon lengthening surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58512	C58512	Access communication device type	Type for all access communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2290-C22902	C22902	Physical therapist name	The name related to the physical therapist	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F1046-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C14442	C14442	Muscle bulk assessment abnormality type	The muscle bulk abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22654	C22654	Medical history respiratory support type	Type of respiratory support utilized by a participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2289-C22874	C22874	Imaging brain site region anatomic site	The anatomic site related to region site of brain for imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2200-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C17469	C17469	Cardiovascular history arrhythmia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.