CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56298 NIH Toolbox Cognitive – Cognition total composition age adjusted scale score

The total composite age adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22668 Medical history neurogenic detrusor indicator

Indicator of whether participant/subject has a neurogenic detrusor

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22639 Speech language pathology focus area assessment intervention type

The type of intervention used for assessments as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53701 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation excess five percent cutoff coun

Count of the Walk, Don't Walk difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59358 Surgery procedure tibial derotational osteotomy internal left ankle anatomic site

Anatomic site of the tibial derotational osteotomy internal procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22843 Modified Ashworth Scale - Limb tone testing right fingers scale

The scale of limb tone testing for the right fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59318 Surgery procedure achilles tendon lengthen left ankle type

Type of achilles tendon lengthening surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C05108 Surgical or therapeutic procedure type

Type of surgical or therapeutic procedure received by the participant/subject

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58512 Access communication device type

Type for all access communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22599 Therapy participant family caregiver count

The number of family members and/or caregivers participating in the treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14442 Muscle bulk assessment abnormality type

The muscle bulk abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C56308 NIH Toolbox Cognitive ? Picture vocabulary age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22676 Medical history disruptive behavior disorder indicator

Indicator of whether participant/subject has disruptive behavior disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53709 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time age scaled value

Value of the Opposite Worlds Opposite World total time age scaled value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59289 Surgery procedure pelvic osteotomy hip laterality type

Laterality type relative to the hip surgical pelvic osteotomy procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59406 Passive range motion hip joint left side flexion measurement value

Value of the left side hip joint flexion passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C19078 Cardiovascular history cardiac surgery other text

The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22596 Therapy setting type

The setting related to therapy session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C59249 Surgery procedure adductor lengthen hip perform indicator

Indicator of whether the participant/subject has undergone the hip adductor lengthening surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.