CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

1249 results.
Operations
Selected 24 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Cerebral Palsy Cerebral Palsy
C21917 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward longest string score

Score is longest string that was repeated exactly in reverse order, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Cerebral Palsy Cerebral Palsy
C58664 Cerebral palsy fine motor function type

Type of fine motor function as indicated by the Bimanual Fine Motor Function (BFMF) scale

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C12784 Variant mutational analysis performed family member indicator

Whether the mutational analysis was performed on a family member

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C59247 Gait step length orthotic condition left measurement

Value of the distance measured in meters between the point of initial contact of the left foot and the point of initial contact of the right foot in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Cerebral Palsy Cerebral Palsy
C21920 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Cerebral Palsy Cerebral Palsy
C58665 Cerebral palsy upper limb function type

Type of upper limb function as indicated by the Manual Ability Classification System (MACS) scale

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C12944 Variant mutational analysis performed indicator

Whether the variant or mutational analysis was performed on the participant/subject

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C58879 Assistive device use indicator

Whether the participant/subject uses an assistive device (e.g., wheelchair)

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C12785 Gene variant mutation detected result type

Type of gene variant or mutation detected

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C59248 Gait step length orthotic condition right measurement

Value of the distance measured in meters between the point of initial contact of the right foot and the point of initial contact of the left foot in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59194 Gait velocity barefoot condition measurement

Value of the speed measured in meters per second in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C21921 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subset response text

Participant response, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Cerebral Palsy Cerebral Palsy
C58667 Eating drinking type

Type of eating and drinking as indicated by the Eating and Drinking Classification System (EDACS)

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Demographics Cerebral Palsy Cerebral Palsy
C58880 Assistive device type

Type for all assistive devices currently used by the participant/subject

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59203 Gait velocity orthotic condition measurement

Value of the speed measured in meters per second in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C59195 Gait cadence barefoot condition measurement

Count of the steps per minute in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C21922 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest trial score

Trial score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Cerebral Palsy Cerebral Palsy
C58666 Communication type

Type of communication as indicated by the Communication Function Classification System (CFCS)

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C59189 Assistive device type other text

The free-text field related to "Assistive device type" specifying other assistive device types currently used by the participant/subject

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Supplemental-Highly Recommended Medical History Cerebral Palsy Cerebral Palsy
1249 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.