CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 24 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1046-C12782	C12782	Gene additional variants unknown significance indicator	Indicator of whether there are additional variants in other genes of unknown significance	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2203-C17402	C17402	Site name	The name of the site for the study	Supplemental-Highly Recommended	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2599-C21922	C21922	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest trial score	Trial score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2814-C58666	C58666	Communication type	Type of communication as indicated by the Communication Function Classification System (CFCS)	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F3054-C59189	C59189	Assistive device type other text	The free-text field related to "Assistive device type" specifying other assistive device types currently used by the participant/subject	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2292-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3054-C59196	C59196	Gait stride length barefoot condition left measurement	Value of the distance measured in meters from heel contact to heel contact on the left foot in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3054-C59204	C59204	Gait cadence orthotic condition measurement	Count of the steps per minute in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12808	C12808	Gene sequenced with no variant mutation indicator	Indicator of whether there are additional genes sequenced with no variants or mutations detected	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12783	C12783	Variant mutational analysis results available indicator	Indicator of whether the variant or mutational analysis results are available on this participant	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2599-C21924	C21924	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2814-C58660	C58660	Timing injury abnormality type	Type as related to the point in time of injury or abnormality	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F3053-C59184	C59184	Migration percentage left value	The value of the left migration percentage	Supplemental-Highly Recommended	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F1046-C12784	C12784	Variant mutational analysis performed family member indicator	Indicator of whether the mutational analysis was performed on a family member	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3054-C59197	C59197	Gait stride length barefoot condition right measurement	Value of the distance in meters from heel contact to heel contact on the right foot in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3054-C59205	C59205	Gait stride length orthotic condition left measurement	Value of the distance measured in meters from heel contact to heel contact on the left foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2599-C21899	C21899	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward highest number score	Score is highest number of digits reached, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2814-C58653	C58653	Cerebral palsy predominant motor type	Type of predominant neuromotor movement experienced by the participant/subject	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F3053-C59185	C59185	Migration percentage right value	The value of the right migration percentage	Supplemental-Highly Recommended	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F1046-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3054-C59206	C59206	Gait stride length orthotic condition right measurement	Value of the distance measured in meters from heel contact to heel contact on the right foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12944	C12944	Variant mutational analysis performed indicator	Indicator of whether the variant or mutational analysis was performed on the participant	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C18873	C18873	Gene mutation detected digenic result specify	The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2292-C00710	C00710	Tobacco current use indicator	Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy

1249 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.