CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS)

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C22900 Manual Ability Classification System (MACS) - Level scale

The scale level related to the Mini-Manual Ability Classification System (MACS)

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C22901 Therapy session cotherapy type

The type related to the co-therapy for the therapy session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

Core Medical History Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Cerebral Palsy Cerebral Palsy
C00314 Medical history taken date and time

Date (and time, if applicable and known) the participant's medical history was taken

Core Medical History Cerebral Palsy Cerebral Palsy
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Core Medical History Cerebral Palsy Cerebral Palsy
C00316 Medical history condition end date and time

Date (and time, if applicable and known) for the end of an event in the participant's medical history

Core Medical History Cerebral Palsy Cerebral Palsy
C00317 Medical history condition start date and time

Date (and time, if applicable and known) for the start of an event in the participant's medical history

Core Medical History Cerebral Palsy Cerebral Palsy
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant is ongoing

Core Medical History Cerebral Palsy Cerebral Palsy
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Core Medical History Cerebral Palsy Cerebral Palsy
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core Medical History Cerebral Palsy Cerebral Palsy
C00327 Prior traumatic injury indicator

Indicator of prior traumatic injury found either historically, previous emergency department visits, radiographic findings, or signs or symptoms at time of presentation

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00328 Prior traumatic injury type

General location of traumatic injury, if evidence of prior traumatic injury

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05460 Seizure indicator

Indicator of seizure activity

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C06192 Fecal incontinence past three month average frequency

Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C06316 Menstruation scale

Scale for how the female participant's menstruation is affected by the spinal cord injury

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C06358 Diabetes mellitus type

Type of diabetes mellitus

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C08177 Hemorrhage indicator

Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10514 Genetic diagnosis point mutation result

The result of the genetic testing revealed a point mutation describe the position and amino acid change

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10516 Scoliosis maximum spine curvature measurement

The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
Displaying 276 - 300 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.