CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2295-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2203-C22677	C22677	Medical history self injurious behavior disorder	Indicator of whether participant/subject has self-injurious behavior disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C56435	C56435	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59404	C59404	Surgery procedure first metatarsal osteotomy arthrodesis right ankle type	Anatomic site of first metatarsal osteotomy/arthrodesis surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2814-C05460	C05460	Seizure indicator	Indicator of seizure activity	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2691-C58485	C58485	Dynamic lower extremity stretch orthosis splint use anatomic site	Anatomic site of the dynamic lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2207-C12680	C12680	Hospitalization non-surgical elective indicator	Indicator of whether the enumerated non-surgical hospitalization was elective	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F3052-C59295	C59295	Surgery procedure open reduction hip laterality type	Laterality type relative to the hip surgical open reduction procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2200-C22623	C22623	Face Legs Activity Cry Consolability (FLACC) - Criteria type	The type of criteria being scored as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59444	C59444	Passive range motion knee joint right side Ely Test measurement value	Value of the right side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F3052-C59255	C59255	Surgery procedure adductor lengthen percutaneous right hip anatomic site other text	The free-text field related to "Surgery procedure adductor lengthen percutaneous right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2198-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2814-C58659	C58659	Cerebral palsy distribution primarily bilateral type	Type of CP distribution primarily bilateral subtype experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F1968-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2290-C22619	C22619	Therapy bill unit service value	The total units of service billed for the patient or client's therapy treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59349	C59349	Surgery procedure plantar fascia release ankle laterality type	Laterality type relative to the ankle surgical plantar fascia release procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2289-C22866	C22866	Imaging magnetic resonance imaging date and time	The date and time related to the magnetic resonance imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2016-C56285	C56285	NIH Toolbox Cognitive ? Cognition fluid composite unadjusted scale score	The unadjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2308-C22099	C22099	Modified Ashworth Scale - Limb tone testing left elbow scale	The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C18503	C18503	Assessment unable text	The free-text field to explain why there was no assessment of nystagmus performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20828	C20828	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale	The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F3050-C59243	C59243	Surgery procedure rectus femoris release transfer right knee type	Type of surgical rectus femoris tendon procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2203-C22656	C22656	Medical history bronchopulmonary dysplasia indicator	Indicator of whether the participant/subject has been diagnosed with bronchopulmonary dysplasia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53659	C53659	Test of Everyday Attention for Children (TEA-Ch) - Map mission deviation from first count	Count of the Mission Map count difference from First (Version A) Mission Map count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58503	C58503	Communication device category type other text	The free-text field related to 'Communication devices category type', specifying other text	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.