CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22844 Modified Ashworth Scale - Limb tone testing left fingers scale

The scale of limb tone testing for the left fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09586 Brief Pain Inventory (BPI) - pain normal work interference scale

Scale assessing how much the pain has interfered with normal work, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C56296 NIH Toolbox Cognitive – Cognition total composition computed score

The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C00702 Alcohol use started age value

Age in years when participant/subject started ingesting alcoholic beverages, including social drinking

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59319 Surgery procedure achilles tendon lengthen right ankle type

Type of achilles tendon lengthening surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C05408 Hospital admission date and time

Date (and time, if applicable and known) the participant/subject was admitted to the hospital

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58513 Access communication device type other text

Text describing the presence of any other type of access communication device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22602 Therapy week frequency

The weekly frequency of the patient or client's treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C53699 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk B score

Score of the Walk, Don't Walk B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C14443 Muscle tone assessment anatomic site

Anatomic location of the muscle tone as part of the motor examination

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C22677 Medical history self injurious behavior disorder

Indicator of whether participant/subject has self-injurious behavior disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05135 Therapy rehabilitation end date time

Date (and time, if applicable and known) on which the therapy or rehabilitation ended

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53228 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value deviation excess five percent cutoff count

Count of the Sky Search time per target difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56419 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other text

Text describing another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59367 Surgery procedure calcaneal osteotomy left ankle sliding anatomic site

Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22852 Modified Ashworth Scale - Limb tone testing left wrist muscle movement type

The type of the muscle movement of limb tone testing for the left wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59222 Surgery procedure hamstring lengthen percutaneous knee laterality type

Laterality type relative to the knee surgical hamstring lengthening percutaneous procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58483 Static upper extremity orthosis splint use anatomic site

Anatomic site of the static upper extremity orthosis/splints use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59284 Surgery procedure varus derotational osteotomy proximal femur left hip type

Type of the surgical varus derotational osteotomy proximal femur procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22619 Therapy bill unit service value

The total units of service billed for the patient or client's therapy treatment session

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59421 Passive range motion hip joint right side external rotation measurement value

Value of the right side hip joint external rotation passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22646 Medical history retinopathy of prematurity indicator

Indicator of whether the participant/subject has been affected by Retinopathy of prematurity

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C14695 Berg Balance Scale (BBS) - unsupport sit scale

The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C20813 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale

The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C12608 Respiratory pattern status

Assessment of the respiratory breathing pattern

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
Displaying 226 - 250 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.