CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59352 Surgery procedure tibial derotational osteotomy ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle tibial derotational osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22102 Modified Ashworth Scale - Limb tone testing right wrist scale

The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59312 Surgery procedure gastrocnemius resection ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08668 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator

Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58506 IPAD application text

Text describing the type of iPad application used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14435 Nystagmus indicator

Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20820 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale

The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22670 Medical history Perinatal neurological event indicator

Indicator of whether participant had a perinatal neurological event

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22641 Speech language pathology focus area leisure community intervention type

The type of intervention used for leisure and/or community as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56323 NIH Toolbox Cognitive – List scoring working memory age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22916 Ventricular dilatation extra axial qualitative assessment status

The status related to qualitative assessment of extra-axial ventricular/space dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58672 Hearing impairment severity type

Type of hearing impairment severity of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C17489 Psychotic disorder indicator

Indicator as to whether the participant/subject has had a psychotic disorder diagnosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C54627 Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score

Score for the Negativity Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C56280 NIH Toolbox Cognitive – Cognition crystallized composite age adjusted scale score

The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17895 Genes sequenced with no mutations text

The free-text field about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53652 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59187 Pelvic obliquity right measurement

The measurement in degrees of the right pelvic obliquity

Supplemental Pelvic Radiographs Cerebral Palsy Cerebral Palsy
C59215 Surgery procedure distal femoral extension osteotomy knee laterality type

Laterality type relative to the knee surgical distal femoral extension osteotomy procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58476 Mobility device use location type other text

Text describing the presence of any other mobility device location use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
Displaying 226 - 250 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.