CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22854 Modified Ashworth Scale - Limb tone testing left fingers muscle movement type

The type of the muscle movement of limb tone testing for the left fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C56280 NIH Toolbox Cognitive – Cognition crystallized composite age adjusted scale score

The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59329 Surgery procedure posterior tibialis tendon transfer ankle laterality type

Laterality type relative to the ankle surgical posterior tibialis tendon transfer procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C58575 Activity daily living device type use indicator

Indicator whether the participant/subject currently uses the selected types of activity of daily living devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59192 Gait profile score barefoot condition left value

Value of the clinical index, Gait Profile Score (GPS), that is used to describe the gait pathology on the left side in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C17895 Genes sequenced with no mutations text

The free-text field about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53652 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C22897 Occupation therapy intervention type

The type as related to intervention in occupational therapy

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14459 Reflex exam global assessment result

The global assessment of the ability and condition of reflexes

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C18768 Therapy or rehabilitation other text

The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C56345 NIH Toolbox Cognitive - Picture sequence memory age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Sequence memory Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56288 NIH Toolbox Cognitive – Cognition fluid composite fully adjusted scale score

The fully adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59337 Surgery procedure posterior tibialis lengthen ankle laterality type

Laterality type relative to the ankle surgical posterior tibialis lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58622 Number minutes day duration

Duration in minutes per day a stander used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59200 Gait profile score orthotic condition overall value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the overall gait pathology in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53664 Test of Everyday Attention for Children (TEA-Ch) - Score dual task age scaled count

Count of the Score dual task age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C14469 Sensory system modalities affected type

The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59230 Surgery procedure hamstring lengthen open left knee anatomic site other text

The free-text field related to "Surgery procedure hamstring lengthen open left knee anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22781 Risk Factor Questionnaire (RFQ) - ages 2-5 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58491 Activity daily living device type

Type for all activity of daily living devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22605 Therapy rehabilitation service type

The type of rehabilitation therapy service received by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C56296 NIH Toolbox Cognitive – Cognition total composition computed score

The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
Displaying 201 - 225 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.