CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 201 - 225 of 1249

« first
‹ previous
…
5
6
7
8
9
10
11
12
13
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C59250	Surgery procedure adductor lengthen hip perform type	Type of hip adductor lengthening surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C59446	Passive range motion knee joint right side thigh foot angle measurement value	Value of the right side knee joint thigh-foot angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
C14543	Genetic disorder type	Whether the participant/subject has a known single gene disorder	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C12673	Position device use indicator	Indicator of whether the participant/subject uses any positioning devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C22882	Imaging brain mineralization diagnosis indicator	The indicator related to brain mineralization being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
C58661	Post-neonatal specific exact cause text	Text describing the cause of the post-neonatal injury or abnormality	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
C15910	Assessment date and time	The date of participant's injury	Supplemental	Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
C20813	Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale	The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
C59298	Surgery procedure open reduction left hip perform type other text	The free-text field related to "Surgery procedure open reduction left hip perform type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C22651	Medical history sensori-neural indicator	Indicator of whether the participant/subject has been affected by sensori-neural impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C59258	Surgery procedure adductor lengthen open right hip anatomic site	Anatomic site of the open surgical adductor lengthening procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C59454	Passive range motion ankle joint left side plantarflexion measurement value	Value of the left side ankle joint plantarflexion passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
C17466	Cardiovascular history arrhythmia atrial fibrillation indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C56951	Walker use type	Type of walker which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C22914	Ventricular dilatation third ventricle qualitative assessment status	The status related to qualitative assessment of third ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
C58670	Visual impairment severity type	Type of visual impairment severity of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
C54622	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result 90 percent confidence interval low bound value	Value of the lower bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
C20821	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale	The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
C59306	Surgery procedure arthroplasty hip perform indicator	Indicator of whether the participant/subject has undergone the arthroplasty surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C56324	NIH Toolbox Cognitive Dimensional change card sort age 3 up raw score	The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
C59266	Surgery procedure psoas lengthen percutaneous right hip anatomic site	Anatomic site of the surgical psoas lengthening percutaneous procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C59213	Surgery procedure anterior hemi epiphyseodesis right knee other text	The free-text field related to "Surgery procedure anterior hemi-epiphyseodesis right knee type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
C17474	Cardiovascular history cardiac surgery indicator	Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C58474	Mobility device use distance type	Distance use type with which the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C21117	Subject name	Name of subject/participant	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy

Displaying 201 - 225 of 1249

« first
‹ previous
…
5
6
7
8
9
10
11
12
13
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.