CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2293-C12665	C12665	Certainty of response type	Certainty of recollection of the response or information	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00202	C00202	Education school participation status	Status of participant/subject's current attendance at school	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F1305-C14706	C14706	Berg Balance Scale (BBS) - scale total score	The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2015-C53703	C53703	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time age scaled value	Value of the Opposite Worlds Same World total time age scaled value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12795	C12795	Gene coding region sequenced indicator	Indicator of whether the entire coding region was sequenced for the allele of the gene for missense/nonsense variant or point mutations or pseudoexons	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59297	C59297	Surgery procedure open reduction right hip perform type	Type of the surgical open reduction procedure performed on the right hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59444	C59444	Passive range motion knee joint right side Ely Test measurement value	Value of the right side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F3052-C59257	C59257	Surgery procedure adductor lengthen open left hip anatomic site	Anatomic site of the open surgical adductor lengthening procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2200-C22631	C22631	Speech language pathology focus area speech production intervention type	The type of intervention used for speech production as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22880	C22880	Imaging brain cyst diagnosis indicator	The indicator related to brain cyst being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58659	C58659	Cerebral palsy distribution primarily bilateral type	Type of CP distribution primarily bilateral subtype experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56311	C56311	NIH Toolbox Cognitive Flanker inhibitory control and attention age 3 up computed score	The computed score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17475	C17475	Cardiovascular history cardiac surgery type	Type of cardiac surgery or mechanical intervention the participant/subject underwent	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C22884	C22884	Person obtained report type	The type indicating who the report was obtained by	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53711	C53711	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time B score	Score of the Opposite Worlds Opposite World total time B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C06192	C06192	Fecal incontinence past three month average frequency	Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C12804	C12804	Gene cDNA variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3052-C59305	C59305	Surgery procedure proximal femoral resection right hip anatomic site other text	The free-text field related to "Surgery procedure proximal femoral resection right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59452	C59452	Passive range motion ankle joint left side knee flex dorsiflexion measurement value	Value of the left side ankle joint dorsiflexion with knee flexed passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2691-C18870	C18870	Mobility device other text	The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59265	C59265	Surgery procedure psoas lengthen percutaneous left hip anatomic site	Anatomic site of the surgical psoas lengthening percutaneous procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22912	C22912	Ventricular dilatation left lateral qualitative assessment status	The status related to qualitative assessment of left lateral ventricle dilation	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58668	C58668	Intellectual impairment type	Type of intellectual impairment of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.