CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 176 - 200 of 1249

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C17476	C17476	Cardiovascular history condition indicator	Indicator as to whether the participant/subject has or had a cardiac condition or complication	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59347	C59347	Surgery procedure toe flexor lengthen tenotomy right ankle anatomic site	Anatomic site of the toe flexor lengthen tenotomy procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2198-C12605	C12605	Caregiver primary type	Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2308-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2015-C53712	C53712	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total deviation excess five percent cutoff value	Value of the Opposite Worlds Opposite World total time difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2291-C18945	C18945	Reflex plantar right response other text	The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C06316	C06316	Menstruation scale	Scale for how the female participant's menstruation is affected by the spinal cord injury	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3050-C59240	C59240	Surgery procedure rectus femoris release transfer left knee type	Type of surgical rectus femoris tendon procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2206-C08663	C08663	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text	Text specifying the participant's/subject's first state of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58501	C58501	Transportation device type	Type for all transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1046-C12805	C12805	Gene mRNA variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C22665	C22665	Medical history chronic constipation indicator	Indicator of whether the participant/subject has/had chronic constipation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C17485	C17485	Psychiatric history clinical depression past year indicator	Indicator as to whether the participant/subject has had clinical depression within the last year	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59355	C59355	Surgery procedure tibial derotational osteotomy external left ankle anatomic site	Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2198-C22588	C22588	Location post-acute discharge type	Indicates the participant's/ subject's current location after discharge from the acute hospital	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2308-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09582	C09582	Brief Pain Inventory (BPI) - relief received percentage number	Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2016-C56277	C56277	NIH Toolbox Cognitive Cognition crystallized composite raw score	The raw score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2291-C22888	C22888	Gait daily step count	The mean number of total steps taken in a full, usual day	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C10520	C10520	Vision affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's vision	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59315	C59315	Surgery procedure gastrocnemius resection right ankle type	Type of gastrocnemius resection surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C22790	C22790	Risk Factor Questionnaire (RFQ) - residential history age 0-17 residence duration	Duration at residence lived from birth through age 17	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58509	C58509	Dedicate speech generating device name	Name of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F1046-C17891	C17891	Gene additional variants unknown significance text	The free-text field about additional variants in other genes of unknown significance	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy

Displaying 176 - 200 of 1249

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.