CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22783 Risk Factor Questionnaire (RFQ) - age 2-5 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58493 Activity Daily Living device type other text

Text describing the presence of any other activity of daily living device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22607 Rehabilitation start age value

The age of the participant/subject at the start of the episode of rehabilitation

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22906 Physical therapy intervention type

The type of intervention related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C12797 Gene targeted variant mutational analysis type

Type of targeted variant or mutational analysis performed for the gene

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53628 Test of Everyday Attention for Children (TEA-Ch) - Score B score

Score of the Score! B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20807 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep deepness assessment past week scale

The scale which represents how often the participant's sleep was deep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C56429 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score

The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59347 Surgery procedure toe flexor lengthen tenotomy right ankle anatomic site

Anatomic site of the toe flexor lengthen tenotomy procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22062 Modified Ashworth Scale - Limb tone testing left shoulder scale

The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C18945 Reflex plantar right response other text

The free-text field related to 'Reflex plantar right response result' specifying other text. The results from reflex plantar response on the right side

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Cerebral Palsy Cerebral Palsy
C59240 Surgery procedure rectus femoris release transfer left knee type

Type of surgical rectus femoris tendon procedure performed on the left knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08663 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text

Text specifying the participant's/subject's first state of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58501 Transportation device type

Type for all transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22615 Rehabilitation physician follow-up care indicator

Indicator for follow-up care from a rehabilitation care physician

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C11061 Gait assessment result

Result of the gait assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C12806 Gene protein variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53636 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct deviation excess five percent cutoff count

Count of the Creature Counting total correct difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20815 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale

The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22636 Speech language pathology focus area cognitive development skill intervention type

The type of intervention used for cognitive and developmental skills as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56438 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score

The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C56318 NIH Toolbox Cognitive – List scoring working memory age 7 up raw score

The raw score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59355 Surgery procedure tibial derotational osteotomy external left ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.