CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22891 Corpus callosum dysplasia status

The status related to dysplasia of the median sagittal section of the brain

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56316 NIH Toolbox Cognitive ? Flanker inhibitory control and attention age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17479 Cardiovascular history ischemia heart disease indicator

Indicator as to whether the participant/subject has or had ischemia heart disease

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Examination Cerebral Palsy Cerebral Palsy
C12609 Education level paternal USA type

Indicator of the highest level of education completed by the participant/subject's father

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C53715 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct age scaled count

Count of the Code transmission total correct age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C53640 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score B score

Score of Creature Counting timing score B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59309 Surgery procedure arthroplasty right hip perform type

Type of the surgical arthroplasty procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59207 Surgical procedure orthopedic knee type

Type of orthopedic surgical knee procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C56953 Cane stick use type

Type of cane which the participant/subject uses, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59269 Surgery procedure psoas lengthen open hip laterality type

Laterality type relative to the hip open surgical psoas lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22916 Ventricular dilatation extra axial qualitative assessment status

The status related to qualitative assessment of extra-axial ventricular/space dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58672 Hearing impairment severity type

Type of hearing impairment severity of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C17489 Psychotic disorder indicator

Indicator as to whether the participant/subject has had a psychotic disorder diagnosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C54627 Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score

Score for the Negativity Scale, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C56280 NIH Toolbox Cognitive – Cognition crystallized composite age adjusted scale score

The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C10539 Diabetes first diagnosis age value

Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17895 Genes sequenced with no mutations text

The free-text field about additional genes sequenced with no mutations detected

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C53652 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59187 Pelvic obliquity right measurement

The measurement in degrees of the right pelvic obliquity

Supplemental Pelvic Radiographs Cerebral Palsy Cerebral Palsy
C59215 Surgery procedure distal femoral extension osteotomy knee laterality type

Laterality type relative to the knee surgical distal femoral extension osteotomy procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
Displaying 151 - 175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.