CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58510 Nonspeak communication device type

Type for all non-speaking communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22597 Therapy participant count

The number of patients participating in the therapy session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14440 Muscle bulk assessment anatomic site

Anatomic location of the muscle bulk exam as part of the motor examination

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20825 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep comfortable position trouble assessment past week scale

The scale which represents how often the participant had trouble getting into a comfortable position to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22674 Medical history obsessive compulsive disorder indicator

Indicator of whether participant/subject has Obsessive Compulsive Disorder (OCD)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05130 Therapy or rehabilitation type

Type of therapy or rehabilitation services received by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53215 Test of Everyday Attention for Children (TEA-Ch) -Data source

Source of whom provided data as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56328 NIH Toolbox Cognitive – Dimensional change card sort age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score

The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59364 Surgery procedure calcaneal osteotomy ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle calcaneal osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22849 Modified Ashworth Scale - Limb tone testing right elbow muscle movement type

The type of the muscle movement of limb tone testing for the right elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C00707 Alcohol consume six or more drinks frequency

The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59324 Surgery procedure anterior tibialis tendon transfer left ankle complete anatomic site

Anatomic site of the anterior tibialis tendon transfer left ankle complete surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C12675 Surgical history procedure tendon release type

Type of surgical procedure the participant/ subject has undergone for tendon release

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58570 Static upper extremity orthosis splint use anatomic site laterality type

Laterality type of static upper extremity orthosis splints anatomic site used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22620 Child Effort Rating - Overall scale

The scale representing the overall rating for "Child Effort" across the entire session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14448 Muscle strength abnormality assessment type

The muscle strength abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C52357 Percent body fat value

Percent body fat calculated value

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12943 Orthosis type

Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53223 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value

Value of Sky Search time per target which is the time taken (seconds) divided by TEAChSkySrchCorrIdTrgtCt (the number of correctly identified targets) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56339 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59417 Passive range motion hip joint left side internal rotation measurement value

Value of the left side hip joint internal rotation passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C19856 Medical history gastrostomy tube since last visit indicator

Indicator of Gtube placed since last study visit

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22602 Therapy week frequency

The weekly frequency of the patient or client's treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.