CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2308-C22858	C22858	Modified Ashworth Scale - Limb tone testing left knee muscle movement type	The type of the muscle movement of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3051-C59333	C59333	Surgery procedure posterior tibialis tendon transfer right ankle type	Type of posterior tibialis tendon transfer surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C18868	C18868	Surgical history procedure scoliosis other text	The free-text field related to 'Surgical history procedure scoliosis type' specifying other text. Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58618	C58618	Mobility device use propel type other text	Text describing other propulsion type of mobility device use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22901	C22901	Therapy session cotherapy type	The type related to the co-therapy for the therapy session	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14463	C14463	Reflex plantar left response result	The results from reflex plantar response on the left side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59226	C59226	Surgery procedure hamstring lengthen percutaneous right knee anatomic site other text	The free-text field related to "Surgery procedure hamstring lengthen percutaneous right knee anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2204-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy
F2201-C18914	C18914	Durable medical equipment other text	The free-text field related to 'Durable medical equipment type' specifying other text. If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53622	C53622	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score B score	Score of the Sky Search attention score B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56349	C56349	NIH Toolbox Cognitive Oral reading recognition english age 7 up unadjusted scale score	The unadjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56423	C56423	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other used indicator	The indicator relating to whether the examinee used his/her other visual or hearing aid during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59341	C59341	Surgery procedure toe flexor lengthen ankle perform type	Type of ankle toe flexor lengthening surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2208-C16189	C16189	Vaccine hospitalization indicator	Indicates whether participant/subject was hospitalized due to serious complications from vaccine	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58626	C58626	Transfer device type other text	Text describing the presence of any other transfer device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C18933	C18933	Nystagmus other text	The free-text field related to 'Nystagmus type' specifying other text. Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59234	C59234	Surgery procedure patellar tendon shorten advance perform indicator	Indicator of whether the participant/subject has undergone the knee patellar tendon shortening/advancement surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22785	C22785	Risk Factor Questionnaire (RFQ) - age 6-11 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 6 and 11, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58495	C58495	Toilet device type	Type for all toileting devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22609	C22609	Communication device new provide indicator	Whether the participant/subject was provided with new communication device (i.e., touch screen)	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2290-C22908	C22908	Physical therapy adaptive equipment orthotic session type	The type of session related to adaptive equipment or orthotics related to the physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53630	C53630	Test of Everyday Attention for Children (TEA-Ch) - Score deviation excess five percent cutoff count	Count of the Score! difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20809	C20809	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep quality assessment past week scale	The scale which represents the participant's description of his/her sleep quality in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22659	C22659	Medical history restrictive airway disease indicator	Indicator of whether the participant has been diagnosed with restrictive airway disease	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C56431	C56431	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval lower bound value	The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.