CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 126 - 150 of 1249

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C22619	Therapy bill unit service value	The total units of service billed for the patient or client's therapy treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
C59421	Passive range motion hip joint right side external rotation measurement value	Value of the right side hip joint external rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
C12608	Respiratory pattern status	Assessment of the respiratory breathing pattern	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
C59401	Surgery procedure first metatarsal osteotomy arthrodesis ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle first metatarsal osteotomy/arthrodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
C22866	Imaging magnetic resonance imaging date and time	The date and time related to the magnetic resonance imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
C17488	Psychiatric history psychotic diagnosis type	Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C11655	Edmonton Symptom Assessment System (ESAS) - pain scale	Scale rating the intensity of pain, as part of the Edmonton Symptom Assessment System (ESAS)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
C10522	Speech affected by disease indicator	The indicator of whether the disease/disorder has affected the participant's/subject's speech	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C59292	Surgery procedure pelvic osteotomy left hip perform type other text	The free-text field related to "Surgery procedure pelvic osteotomy left hip perform type" specifying other text.	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C22904	Physical therapy focus area type	The type related to physical therapy focus area	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
C59436	Passive range motion knee joint left side extension measurement value	Value of the left side knee joint extension passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
C59252	Surgery procedure adductor lengthen percutaneous left hip anatomic site	Anatomic site of the percutaneous surgical adductor lengthening procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C22875	Imaging brain hemorrhage diagnosis indicator	The indicator related to brain hemorrhage being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
C17494	Delay language cognitive milestone indicator	Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
C22597	Therapy participant count	The number of patients participating in the therapy session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
C16191	Chicken pox infection age value	The age value of participant/subject when they experienced a natural infection of chicken pox	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
C14126	Seizure classification type	The type of seizures present by classification	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C59300	Surgery procedure proximal femoral resection hip perform indicator	Indicator of whether the participant/subject has undergone the hip proximal femoral resection surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C59447	Passive range motion knee joint left side transmalleolar angle measurement value	Value of the left side knee joint transmalleolar angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
C12679	Mobility device use indicator	Whether the participant/subject uses a mobility device (e.g., wheelchair)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
C59260	Surgery procedure adductor lengthen open right hip anatomic site other text	The free-text field related to "Surgery procedure adductor open lengthen right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
C22890	Corpus callosum thin hypoplasia status	The status related to the thinning or hypoplasia of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
C22646	Medical history retinopathy of prematurity indicator	Indicator of whether the participant/subject has been affected by Retinopathy of prematurity	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
C22618	Therapy session minute duration	The duration of the patient or client's treatment session in minutes	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy

Displaying 126 - 150 of 1249

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.