CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

Displaying 1101 - 1125 of 1249

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2015-C53635	C53635	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct deviation from first count	Count of the Creature Counting total correct difference from First (Version A) Creature Counting total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1968-C56437	C56437	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 confidence interval upper bound value	The upper bound of the subject's Full Scale IQ-4 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59340	C59340	Surgery procedure toe flexor lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle toe flexor lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F1046-C12797	C12797	Gene targeted variant mutational analysis type	Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2208-C16187	C16187	Vaccine type	Vaccination received by pediatric patient	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58625	C58625	Communication device type use indicator	Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C18932	C18932	Cranial nerves global assessment other text	The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59233	C59233	Surgery procedure semitendinosus transfer adductor magnus knee perform laterality type	Laterality type relative to the knee surgical semitendinosus transfer to adductor magnus procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22784	C22784	Risk Factor Questionnaire (RFQ) - age 6-11 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 6 and 11, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58494	C58494	Bath device type other text	Text describing the presence of any other bathing device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22608	C22608	Total rehabilitation session count	The total number of rehabilitation sessions the participant/subject has been part of	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2290-C22907	C22907	Physical therapy device type	The type of device related to the physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2060-C20808	C20808	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale	The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Cerebral Palsy	Cerebral Palsy
F2015-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59348	C59348	Surgery procedure plantar fascia release ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle plantar fascia release surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F1046-C12806	C12806	Gene protein variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2308-C22071	C22071	Modified Ashworth Scale - Limb tone testing right elbow scale	The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09575	C09575	Brief Pain Inventory (BPI) - other pain indicator	Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F1968-C50680	C50680	Examiner name	The name of the person performing the exam	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2291-C18946	C18946	Reflex plantar left response other text	The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59241	C59241	Surgery procedure rectus femoris release transfer left knee anatomic site	The free-text field related to the location of the left knee surgical rectus femoris release transfer procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2206-C08664	C08664	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number	Number specifying the participant's/subject's first zip code of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58502	C58502	Communication devices category type	Type of category for all communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22616	C22616	Orthopedic surgeon follow-up care indicator	Indicator for follow-up care from an orthopedic surgeon	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy

Displaying 1101 - 1125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.