CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1051 - 1075 of 1249
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22888 Gait daily step count

The mean number of total steps taken in a full, usual day

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59315 Surgery procedure gastrocnemius resection right ankle type

Type of gastrocnemius resection surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22790 Risk Factor Questionnaire (RFQ) - residential history age 0-17 residence duration

Duration at residence lived from birth through age 17

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58509 Dedicate speech generating device name

Name of dedicated speech generating device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22596 Therapy setting type

The setting related to therapy session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14439 Motor exam global assessment abnormality type

Global assessment abnormality type found during the motor exam

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20823 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime sadness assessment past week scale

The scale which represents how often the participant felt sad at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22673 Medical history autism indicator

Indicator of whether participant/subject has Autism

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22644 Speech language pathology focus area vocation job intervention type

The type of intervention used for vocation and jobs as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56327 NIH Toolbox Cognitive – Dimensional change card sort age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C51670 School name

The name of the school that the subject currently attends, if applicable

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59363 Surgery procedure hindfoot arthrodesis right ankle anatomic site

Anatomic site of hindfoot arthrodesis surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22848 Modified Ashworth Scale - Limb tone testing left shoulder muscle movement type

The type of the muscle movement of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59323 Surgery procedure anterior tibialis tendon transfer left ankle split anatomic site

Anatomic site of the anterior tibialis tendon transfer left ankle split surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C12674 Surgical history procedure scoliosis type

Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58569 Static upper extremity orthosis splint frequency use laterality type

Laterality type of static upper extremity orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22619 Therapy bill unit service value

The total units of service billed for the patient or client's therapy treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14447 Muscle strength abnormality assessment indicator

Whether the muscle strength assessment found any abnormalities

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20836 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale

The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C12683 Mobility device type

Type for all mobility devices currently used by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53222 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation excess five percent cutoff count

Count of Sky Search of difference of the number of correctly identified targets in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56337 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56413 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score

The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59398 Surgery procedure midfoot osteotomy ankle laterality type

Laterality type relative to the ankle surgical midfoot osteotomy procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 1051 - 1075 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.