CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1026 - 1050 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22867 Imaging pulse sequence cerebral palsy type

Type of imaging pulse sequence used in cerebral palsy specific case report form (this is using a different permissible value list that overlaps and combines terms within the Imaging pulse sequency type CDE)

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56296 NIH Toolbox Cognitive – Cognition total composition computed score

The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17463 Cardiovascular history abnormal echocardiogram indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22586 Maternal birth date

Date (and time, if applicable and known) the mother of the participant/subject was born

Supplemental Demographics Cerebral Palsy Cerebral Palsy
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53699 Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk B score

Score of the Walk, Don't Walk B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59293 Surgery procedure pelvic osteotomy right hip perform type other text

The free-text field related to "Surgery procedure pelvic osteotomy right hip perform type" specifying other text.

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59437 Passive range motion knee joint right side extension measurement value

Value of the right side knee joint extension passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22656 Medical history bronchopulmonary dysplasia indicator

Indicator of whether the participant/subject has been diagnosed with bronchopulmonary dysplasia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59253 Surgery procedure adductor lengthen percutaneous right hip anatomic site

Anatomic site of the percutaneous surgical adductor lengthening procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22627 Face Legs Activity Cry Consolability (FLACC) - Cry score

The score of the cry portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22876 Imaging brain edema diagnosis indicator

The indicator related to brain edema being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58655 Cerebral palsy distribution type

Type of condition distribution (spasticity subtype) experienced by the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C56304 NIH Toolbox Cognitive – Picture vocabulary age 3 up age adjusted scale score

The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17471 Cardiovascular history arrhythmia supraventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of supraventricular tachycardia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C17496 Delay social function indicator

Indicator as to whether the participant/subject has or had delayed social function

Supplemental Motor Development History Cerebral Palsy Cerebral Palsy
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C22792 Vaccines received indicator

Indicates whether participant/subject received the vaccine

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C53707 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total deviation excess five percent cutoff value

Value of the Opposite Worlds Same World total time difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12800 Gene missense nonsense variant point mutation insertion deletion type

Type of the insertion deletion of the missense/nonsense variant or point mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59301 Surgery procedure proximal femoral resection hip laterality type

Laterality type relative to the hip surgical proximal femoral resection procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59448 Passive range motion knee joint right side transmalleolar angle measurement value

Value of the right side knee joint transmalleolar angle passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59261 Surgery procedure adductor lengthen neuronectomy hip laterality type

Laterality type relative to the hip neuronectomy surgical adductor lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
Displaying 1026 - 1050 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.