CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20810 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep sufficient assessment past week scale

The scale which represents how often the participant got enough sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22660 Medical history tracheomalcia indicator

Indicator of whether the participant has been diagnosed with tracheomalacia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59350 Surgery procedure plantar fascia release left ankle type

Type of plantar fascia release surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22100 Modified Ashworth Scale - Limb tone testing right hip scale

The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09577 Brief Pain Inventory (BPI) - worst pain rating scale

Scale indicating the rating of the worst pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C18949 Sensory system modalities affected other text

The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59244 Surgery procedure rectus femoris release transfer right knee anatomic site

The free-text field related to the location of the right knee surgical rectus femoris release transfer procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08666 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence location type

Type describing the participant's/subject's first location of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58504 Speak communication device type

Type for all speaking communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C06058 Pain problem grade

Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14433 Cranial nerves global assessment result

The condition of Cranial Nerves

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20818 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale

The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22668 Medical history neurogenic detrusor indicator

Indicator of whether participant/subject has a neurogenic detrusor

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59454 Passive range motion ankle joint left side plantarflexion measurement value

Value of the left side ankle joint plantarflexion passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C56951 Walker use type

Type of walker which the participant/subject uses, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59267 Surgery procedure psoas lengthen percutaneous left hip anatomic site other text

The free-text field related to "Surgery procedure psoas lengthen percutaneous left hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22914 Ventricular dilatation third ventricle qualitative assessment status

The status related to qualitative assessment of third ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58670 Visual impairment severity type

Type of visual impairment severity of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C17486 Psychiatric history clinical depressive diagnosis indicator

Indicator as to whether the participant/subject had a depressive disorder diagnosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C06058 Pain problem grade

Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C54622 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result 90 percent confidence interval low bound value

Value of the lower bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C56278 NIH Toolbox Cognitive – Cognition crystallized composite computed score

The computed score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C10521 Hearing affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's hearing

Supplemental Medical History Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.