CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22676 Medical history disruptive behavior disorder indicator

Indicator of whether participant/subject has disruptive behavior disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C56330 NIH Toolbox Cognitive – Dimensional change card sort age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C12793 Gene exon predicted reading frame type

Type of predicted reading frame

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59366 Surgery procedure calcaneal osteotomy left ankle type

Type of calcaneal osteotomy surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22851 Modified Ashworth Scale - Limb tone testing right wrist muscle movement type

The type of the muscle movement of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59326 Surgery procedure anterior tibialis tendon transfer right ankle split anatomic site

Anatomic site of the anterior tibialis tendon transfer right ankle split surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C12678 Hospitalization non surgical total lifetime count

Count of the total number of times that the participant/subject has been hospitalized for a non-surgical reason

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58572 Dynamic lower extremity stretch orthosis splint use anatomic site laterality type

Laterality type of dynamic lower extremity stretching orthosis splints anatomic site used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22629 Therapy factor influence session type

The type of factor(s) that influenced the treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14454 Cerebellar or coordination assessment type

Type of cerebellar/coordination assessment performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Cerebral Palsy Cerebral Palsy
C58482 Static upper extremity orthosis splint use frequency type

Frequency type with which the participant/subject uses their static upper extremity orthosis/splints, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C56411 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score

The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59283 Surgery procedure varus derotational osteotomy proximal femur right hip neck shaft angle value

Value of the varus derotational osteotomy proximal femur right neck shaft angle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22618 Therapy session minute duration

The duration of the patient or client's treatment session in minutes

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59419 Passive range motion hip joint left side external rotation measurement value

Value of the left side hip joint external rotation passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C22478 Attention deficit hyperactivity disorder indicator

The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C59400 Surgery procedure midfoot osteotomy right ankle anatomic site

Anatomic site of midfoot osteotomy surgical procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22604 Therapy consultative frequency

The consultative frequency (less than once a month) of the patient or client's treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22865 Reader initial text

The free-text field related to the initials of the reader

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56294 NIH Toolbox Cognitive – Cognition early childhood composite fully adjusted scale score

The fully adjusted scale score for the Cognition Early Childhood field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.