CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C59286 Surgery procedure varus derotational osteotomy proximal femur left hip type other text

The free-text field related to "Surgery procedure varus derotational osteotomy proximal femur left hip type" specifying other text.

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59310 Surgery procedure arthroplasty left hip perform type other text

The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59281 Surgery procedure varus derotational osteotomy proximal femur hip laterality type

Laterality type relative to the hip surgical varus derotational osteotomy of proximal femur procedure undergone by participant/subject

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56409 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score

The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59367 Surgery procedure calcaneal osteotomy left ankle sliding anatomic site

Anatomic site of calcaneal osteotomy surgical sliding procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22852 Modified Ashworth Scale - Limb tone testing left wrist muscle movement type

The type of the muscle movement of limb tone testing for the left wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59327 Surgery procedure anterior tibialis tendon transfer right ankle complete anatomic site

Anatomic site of the anterior tibialis tendon transfer right ankle complete surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C12680 Hospitalization non-surgical elective indicator

Indicator of whether the enumerated non-surgical hospitalization was elective

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58573 Static lower extremity stretch orthosis splint frequency use laterality type

Laterality type of static lower extremity stretching orthosis splints frequency used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22895 Occupational therapy focus area type

The type as related to the areas of focus in occupational therapy

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14455 Cerebellar or coordination assessment abnormality present status

Whether the cerebellar/coordination assessment found abnormalities

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C14292 Durable medical equipment indicator

Indicates if the participant/ subject was provided with any durable medical equipment

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53226 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value B score

Score of the Sky Search time per target B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56343 NIH Toolbox Cognitive – Picture sequence memory age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C12792 Gene whole deletion indicator

Whether the entire gene was deleted

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C56417 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale 2 T score sum value

The sum of two of the subject's T scores (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C22860 Modified Ashworth Scale - Limb tone testing left ankle muscle movement type

The type of the muscle movement of limb tone testing for the left ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59335 Surgery procedure posterior tibialis tendon transfer right ankle complete anatomic site

Anatomic site of the posterior tibialis tendon transfer right ankle complete surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C58620 Truncal support device type other text

Text describing the presence of any other truncal support device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59198 Gait orthosis type text

The free-text field related to the type of orthoses currently used by the participant/subject

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C14466 Sensory system global assessment result

The condition and ability of sensory system

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59228 Surgery procedure hamstring lengthen open left knee anatomic site

Anatomic site of the surgical hamstring lengthening open procedure performed on the left knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.