CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 851 - 875 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17769 Rater name

Name of rater

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C12791 Gene exon last deleted duplicated name

Name of the exon last deleted or duplicated

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C08177 Hemorrhage indicator

Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C59308 Surgery procedure arthroplasty left hip perform type

Type of the surgical arthroplasty procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C59455 Passive range motion ankle joint right side plantarflexion measurement value

Value of the right side ankle joint plantarflexion passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C56952 Crutch use type

Type of crutches which the participant/subject uses, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59268 Surgery procedure psoas lengthen percutaneous right hip anatomic site other text

The free-text field related to "Surgery procedure psoas lengthen percutaneous right hip anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56301 NIH Toolbox Cognitive – Picture vocabulary age 3 up raw score

The raw score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22915 Ventricular dilatation fourth ventricle qualitative assessment status

The status related to qualitative assessment of fourth ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56324 NIH Toolbox Cognitive – Dimensional change card sort age 3 up raw score

The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C58671 Hearing impairment indicator

Indicator of whether participant/subject has hearing impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C17488 Psychiatric history psychotic diagnosis type

Type of psychotic disorder the participant/subject has been diagnosed with, if any

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C53216 Test of Everyday Attention for Children (TEA-Ch) - Assessment version type

Type for the version being administered of the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C53704 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time percentage value

Value of the Opposite Worlds Same World total time percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C54623 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index 90 percent confidence interval up bound value

Value of the upper bound of the 90% confidence interval for the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C12800 Gene missense nonsense variant point mutation insertion deletion type

Type of the insertion deletion of the missense/nonsense variant or point mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C10522 Speech affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's speech

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score

The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59186 Pelvic obliquity left measurement

The measurement in degrees of the left pelvic obliquity

Supplemental Pelvic Radiographs Cerebral Palsy Cerebral Palsy
C20832 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble assessment past week scale

The scale which represents how often the participant had trouble sleeping in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C59214 Surgery procedure distal femoral extension osteotomy knee perform indicator

Indicator of whether the participant/subject has undergone the knee distal femoral extension osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C58475 Mobility device use location type

Use location type where the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59276 Surgery procedure femoral derotation osteotomy left hip anatomic site

Anatomic site of the surgical femoral derotation osteotomy procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56312 NIH Toolbox Cognitive – Flanker inhibitory control and attention age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
Displaying 851 - 875 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.