CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 826 - 850 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12798 Gene missense nonsense variant point mutation location type

Type of location of the missense/nonsense variant or point mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C22896 Occupational therapy focus area minute time

The time in minutes as related to the areas of focus in occupational therapy

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C59306 Surgery procedure arthroplasty hip perform indicator

Indicator of whether the participant/subject has undergone the arthroplasty surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C20836 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale

The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C59453 Passive range motion ankle joint right side knee flex dorsiflexion measurement value

Value of the right side ankle joint dorsiflexion with knee flexed passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C14293 Durable medical equipment type

If the participant/ subject was provided with any durable medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C18883 Orthosis other text

The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59266 Surgery procedure psoas lengthen percutaneous right hip anatomic site

Anatomic site of the surgical psoas lengthening percutaneous procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56337 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22913 Ventricular dilatation right lateral qualitative assessment status

The status related to qualitative assessment of right lateral ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58669 Visual impairment indicator

Indicator of whether participant has visual impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Cerebral Palsy Cerebral Palsy
C14430 Tanner stage

Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair

Supplemental Physical Examination Cerebral Palsy Cerebral Palsy
C54620 Brief Test of Executive Function Adult Version (BRIEF A) - Scale index result percentage value

Percentile value of the result of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C12807 Gene second disease allele indicator

Indicator of whether a second disease allele was identified

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59212 Surgery procedure anterior hemi epiphyseodesis right knee type

Type of anterior hemi-epiphyseodesis surgical procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C19157 Primary care physician follow-up care indicator

Indicator for follow-up care from a primary care physician

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C58473 Mobility device use frequency type

Frequency type with which the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59274 Surgery procedure hip femoral derotation osteotomy perform indicator

Indicator of whether the participant/subject has undergone the hip femoral derotation osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56347 NIH Toolbox Cognitive – Oral reading recognition english age 7 up raw score

The raw score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C59405 Passive range motion hip joint type

Type of hip joint passive range of motion

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C53652 Test of Everyday Attention for Children (TEA-Ch) - Sky search dual task decrement deviation excess five percent cutoff count

Count of Sky Search dual task decrement difference of the Sky Search dual task decrement value in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C53638 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score age scaled count

Count of Creature Counting timing score age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
Displaying 826 - 850 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.