CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C19058	C19058	Psychiatric history psychotic diagnosis other text	The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C00328	C00328	Prior traumatic injury type	General location of traumatic injury, if evidence of prior traumatic injury	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2235-C54632	C54632	Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Inconsistency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2203-C12208	C12208	Gastrointestinal therapy nutrition supplement type	Type(s) of nutritional supplement(s) being taken by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2201-C22612	C22612	Home modification provide indicator	Indicates if the participant/subject was provided with any home modifications	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53633	C53633	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct percentage value	Value of Creature Counting total correct percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20812	C20812	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep refresh assessment past week scale	The scale which represents how often the participant's sleep was refreshing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2200-C22633	C22633	Speech language pathology focus area language expressive produce intervention type	The type of intervention used for expressive language and producing as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F1968-C56435	C56435	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3054-C59190	C59190	Gait deviation index barefoot condition score	Score of the Gait Deviation Index (GDI) derived from three-dimensional gait analysis (3DGA) that expresses overall gait pathology in the barefoot condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3050-C59220	C59220	Surgery procedure hamstring lengthen knee perform indicator	Indicator of whether the participant/subject has undergone the knee hamstring lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58481	C58481	Dynamic upper extremity orthosis splint use anatomic site	Anatomic site of the dynamic upper extremity orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59282	C59282	Surgery procedure varus derotational osteotomy proximal femur left hip neck shaft angle value	Value of the varus derotational osteotomy proximal femur left neck shaft angle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22604	C22604	Therapy consultative frequency	The consultative frequency (less than once a month) of the patient or client's treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F3049-C59418	C59418	Passive range motion hip joint right side internal rotation measurement value	Value of the right side hip joint internal rotation passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2203-C22469	C22469	Medical history tuberculosis condition indicator	The indicator related to medical history of the condition tuberculosis (TB)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2289-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2203-C17460	C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2202-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2060-C20820	C20820	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale	The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2200-C22641	C22641	Speech language pathology focus area leisure community intervention type	The type of intervention used for leisure and/or community as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56323	C56323	NIH Toolbox Cognitive List scoring working memory age 7 up fully adjusted scale score	The fully adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59290	C59290	Surgery procedure pelvic osteotomy left hip perform type	Type of the surgical pelvic osteotomy procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.