CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58667 Eating drinking type

Type of eating and drinking as indicated by the Eating and Drinking Classification System (EDACS)

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Demographics Cerebral Palsy Cerebral Palsy
C58880 Assistive device type

Type for all assistive devices currently used by the participant/subject

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C18913 Adjunctive treatment other text

The free-text field related to 'Adjunctive treatment type' specifying other text. Describe the type(s) of adjunctive treatments

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53621 Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score percentage value

Value of Sky Search attention score percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56348 NIH Toolbox Cognitive – Oral reading recognition english age 7 up computed score

The computed score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56422 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid assist listen device used indicator

The indicator relating to whether the examinee used his/her assisted listening device during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59340 Surgery procedure toe flexor lengthen ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle toe flexor lengthening surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C16187 Vaccine type

Vaccination received by pediatric patient

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C58625 Communication device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C18932 Cranial nerves global assessment other text

The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59233 Surgery procedure semitendinosus transfer adductor magnus knee perform laterality type

Laterality type relative to the knee surgical semitendinosus transfer to adductor magnus procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22784 Risk Factor Questionnaire (RFQ) - age 6-11 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 6 and 11, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58494 Bath device type other text

Text describing the presence of any other bathing device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22608 Total rehabilitation session count

The total number of rehabilitation sessions the participant/subject has been part of

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22907 Physical therapy device type

The type of device related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C53629 Test of Everyday Attention for Children (TEA-Ch) - Score deviation from first count

Count of the Score! difference from First (Version A) Score! count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20808 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restlessness assessment past week scale

The scale which represents how often the participant's sleep was restless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C56430 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value

The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59348 Surgery procedure plantar fascia release ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle plantar fascia release surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22071 Modified Ashworth Scale - Limb tone testing right elbow scale

The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09575 Brief Pain Inventory (BPI) - other pain indicator

Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C18946 Reflex plantar left response other text

The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59241 Surgery procedure rectus femoris release transfer left knee anatomic site

The free-text field related to the location of the left knee surgical rectus femoris release transfer procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.