CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59204 Gait cadence orthotic condition measurement

Count of the steps per minute in the orthotic condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental-Highly Recommended Behavioral History Cerebral Palsy Cerebral Palsy
C59196 Gait stride length barefoot condition left measurement

Value of the distance measured in meters from heel contact to heel contact on the left foot in the barefoot condition

Supplemental-Highly Recommended Gait Analysis Cerebral Palsy Cerebral Palsy
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53704 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time percentage value

Value of the Opposite Worlds Same World total time percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C12796 Gene targeted variant mutational analysis indicator

Indicator of whether variant or mutational analysis was targeted at a particular variant or mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59298 Surgery procedure open reduction left hip perform type other text

The free-text field related to "Surgery procedure open reduction left hip perform type" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59445 Passive range motion knee joint left side thigh foot angle measurement value

Value of the left side knee joint thigh-foot angle passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C59258 Surgery procedure adductor lengthen open right hip anatomic site

Anatomic site of the open surgical adductor lengthening procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22632 Speech language pathology focus area language receptive understand intervention type

The type of intervention used for receptive language and understanding as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22881 Imaging brain scar gliosis diagnosis indicator

The indicator related to brain scarring gliosis being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56312 NIH Toolbox Cognitive – Flanker inhibitory control and attention age 3 up unadjusted scale score

The unadjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17476 Cardiovascular history condition indicator

Indicator as to whether the participant/subject has or had a cardiac condition or complication

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22886 Delay acquisition language communication milestone indicator

The indicator related to the subject having delayed acquisition of language or communication milestones, diagnosed be a physician

Supplemental Motor Development History Cerebral Palsy Cerebral Palsy
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C08088 Age value unit of measure

Unit of measure used to initially record the age value

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C53712 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total deviation excess five percent cutoff value

Value of the Opposite Worlds Opposite World total time difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C06316 Menstruation scale

Scale for how the female participant's menstruation is affected by the spinal cord injury

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12805 Gene mRNA variant mutation name

Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the messenger ribonucleic acid (mRNA) variant or mutation

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59306 Surgery procedure arthroplasty hip perform indicator

Indicator of whether the participant/subject has undergone the arthroplasty surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59453 Passive range motion ankle joint right side knee flex dorsiflexion measurement value

Value of the right side ankle joint dorsiflexion with knee flexed passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C18883 Orthosis other text

The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59266 Surgery procedure psoas lengthen percutaneous right hip anatomic site

Anatomic site of the surgical psoas lengthening percutaneous procedure performed on the right hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22913 Ventricular dilatation right lateral qualitative assessment status

The status related to qualitative assessment of right lateral ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58669 Visual impairment indicator

Indicator of whether participant has visual impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
Displaying 51 - 75 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.