CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00319 Medical history condition ongoing indicator

Indicator of whether a medical condition/disease experienced by the participant/subject is ongoing

Core Medical History Cerebral Palsy Cerebral Palsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Cerebral Palsy Cerebral Palsy
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Core Vital Signs Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Cerebral Palsy Cerebral Palsy
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Core Demographics Cerebral Palsy Cerebral Palsy
C19500 Assessment performed date

The date of assessment of the examination being performed

Core Vital Signs Cerebral Palsy Cerebral Palsy
C00321 Medical history for body system indicator

Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system

Core Medical History Cerebral Palsy Cerebral Palsy
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation)

Core Vital Signs Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

Core Motor Development History Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C08503 36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score

Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08511 36-item Short Form Health Survey (SF-36) - Health limited walking one block score

Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08519 36-item Short Form Health Survey (SF-36) - Work not carefully emotional problems indicator

Indicator for surveyee-reported doing work or other activities not as carefully as usual as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08526 36-item Short Form Health Survey (SF-36) - Times calm peaceful score

Score of times feeling calm and peaceful during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08534 36-item Short Form Health Survey (SF-36) - Healthy as anybody score

Score of how true or false surveyee perceived the statement: I am as healthy as anybody I know, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08504 36-item Short Form Health Survey (SF-36) - Health limited moderate activities score

Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08512 36-item Short Form Health Survey (SF-36) - Health limited bathing dressing score

Score of surveyee-reported limited bathing or dressing due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08527 36-item Short Form Health Survey (SF-36) - Times energy score

Score of times having a lot of energy during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08535 36-item Short Form Health Survey (SF-36) - Expect worse health score

Score of how true or false surveyee perceived the statement: I expect my health to get worse, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08505 36-item Short Form Health Survey (SF-36) - Health limited carrying groceries score

Score of surveyee-reported limited lifting or carrying groceries due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08513 36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08528 36-item Short Form Health Survey (SF-36) - Times downhearted blue score

Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C08536 36-item Short Form Health Survey (SF-36) - Excellent health score

Score of how true or false surveyee perceived the statement: My health is excellent, as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
Displaying 51 - 75 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.