CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58669 Visual impairment indicator

Indicator of whether participant has visual impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22914 Ventricular dilatation third ventricle qualitative assessment status

The status related to qualitative assessment of third ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C22913 Ventricular dilatation right lateral qualitative assessment status

The status related to qualitative assessment of right lateral ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C22912 Ventricular dilatation left lateral qualitative assessment status

The status related to qualitative assessment of left lateral ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C22915 Ventricular dilatation fourth ventricle qualitative assessment status

The status related to qualitative assessment of fourth ventricle dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C22916 Ventricular dilatation extra axial qualitative assessment status

The status related to qualitative assessment of extra-axial ventricular/space dilation

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C12783 Variant mutational analysis results available indicator

Indicator of whether the variant or mutational analysis results are available on this participant

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C12944 Variant mutational analysis performed indicator

Indicator of whether the variant or mutational analysis was performed on the participant

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C12784 Variant mutational analysis performed family member indicator

Indicator of whether the mutational analysis was performed on a family member

Supplemental-Highly Recommended Mutation Analysis Cerebral Palsy Cerebral Palsy
C17896 Variant mutational analysis not performed reason

Reason for why the mutational analysis was not performed

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C22792 Vaccines received indicator

Indicates whether participant/subject received the vaccine

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C16187 Vaccine type

Vaccination received by pediatric patient

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C16189 Vaccine hospitalization indicator

Indicates whether participant/subject was hospitalized due to serious complications from vaccine

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C22793 Vaccine history report informant specify type

The type of informant the vaccine history report was collected from

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C58620 Truncal support device type other text

Text describing the presence of any other truncal support device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58619 Truncal support device type

Type of truncal support device type currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59188 Triradiate cartilage status

Status of closure of the triradiate cartilage

Supplemental Pelvic Radiographs Cerebral Palsy Cerebral Palsy
C58500 Transportation device type other text

Text describing the presence of any other transfer device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58501 Transportation device type

Type for all transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58470 Transfer transportation device use indicator

Indicator of whether the participant/subject uses any transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58624 Transfer transportation device type use indicator

Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58498 Transfer transportation device type other text

Text describing the presence of any other transfer/transportation device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C58497 Transfer transportation device type

Type for all transfer/transportation devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
Displaying 51 - 75 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.