CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 451 - 475 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12682 Orthosis use indicator

Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59261 Surgery procedure adductor lengthen neuronectomy hip laterality type

Laterality type relative to the hip neuronectomy surgical adductor lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22891 Corpus callosum dysplasia status

The status related to dysplasia of the median sagittal section of the brain

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C17889 Gene missense nonsense variant point mutation location exon text

The free-text field about missense/nonsense variant or point mutation at the exon

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C56316 NIH Toolbox Cognitive ? Flanker inhibitory control and attention age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17479 Cardiovascular history ischemia heart disease indicator

Indicator as to whether the participant/subject has or had ischemia heart disease

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Examination Cerebral Palsy Cerebral Palsy
C12609 Education level paternal USA type

Indicator of the highest level of education completed by the participant/subject's father

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C53715 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct age scaled count

Count of the Code transmission total correct age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C09580 Brief Pain Inventory (BPI) - current pain rating scale

Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C21107 Gait abnormality assessment other text

The free-text field for other type of abnormal gait

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59313 Surgery procedure gastrocnemius resection ankle laterality type

Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C53215 Test of Everyday Attention for Children (TEA-Ch) -Data source

Source of whom provided data as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C08669 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use indicator

Indicator as to whether the participant's/subject's first residence was located near pesticide spraying activities during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58507 Android application text

Text describing the type of Android application used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C21117 Subject name

Name of subject/participant

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14436 Nystagmus type

Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score

The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C20821 Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale

The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22671 Medical history abnormal sleep EEG indicator

Indicator of whether a participant/subject has/had an abnormal sleep EEG

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22642 Speech language pathology focus area education school intervention type

The type of intervention used for education and school as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56324 NIH Toolbox Cognitive – Dimensional change card sort age 3 up raw score

The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59361 Surgery procedure hindfoot arthrodesis ankle laterality type

Laterality type relative to the ankle surgical hindfoot arthrodesis procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
Displaying 451 - 475 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.