CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2207-C17971	C17971	Hospitalization non surgical number	Number used to identify the non-surgical hospitalization being described	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58577	C58577	Eat drink assistive device type	Type of eating / drinking device currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59193	C59193	Gait profile score barefoot condition right value	Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the barefoot condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2202-C22898	C22898	Occupational therapy therapist name	The name related to the occupational therapy therapist	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14460	C14460	Reflex assessment anatomic site	The location or category for reflex assessment of limbs	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2204-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy
F2201-C18870	C18870	Mobility device other text	The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53230	C53230	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score count	Count of Sky Search attention score which is the TEAChSkySrchTimeTargetVal minus the number of correctly identified motor targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56346	C56346	NIH Toolbox Cognitive Picture sequence memory age 3 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56420	C56420	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid glasses used indicator	The indicator relating to whether the examine used his/her glasses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59338	C59338	Surgery procedure posterior tibialis lengthen left ankle type	Type of posterior tibialis lengthening surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C52422	C52422	Surgical history procedure neurological surgery type	Type of neurological surgery procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58623	C58623	Number days week count	Count of days per week a stander used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59201	C59201	Gait profile score orthotic condition left value	Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the left side in the orthotic condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C18503	C18503	Assessment unable text	The free-text field to explain why there was no assessment of nystagmus performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59231	C59231	Surgery procedure hamstring lengthen open right knee anatomic site other text	The free-text field related to "Surgery procedure hamstring lengthen open right knee anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2205-C22782	C22782	Risk Factor Questionnaire (RFQ) - age 2-5 moderate physical activity indicator	Hours spent doing moderate physical activities by the subject in an average week between the ages of 2 and 5, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58492	C58492	Bath device type	Type for all bathing devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C22606	C22606	Therapy rehabilitation location type	The location where the participant/subject received their rehabilitation therapy	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2290-C22905	C22905	Physcial therapy minute duration	The duration in minutes related to physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53627	C53627	Test of Everyday Attention for Children (TEA-Ch) - Score percentage value	Value of the Score! Percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20806	C20806	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep lightness assessment past week scale	The scale which represents how often the participant's sleep was light in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F1968-C56428	C56428	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension confidence interval upper bound value	The upper bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59346	C59346	Surgery procedure toe flexor lengthen tenotomy left ankle anatomic site	Anatomic site of the toe flexor lengthen tenotomy procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.