CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C22867	C22867	Imaging pulse sequence cerebral palsy type	Type of imaging pulse sequence used in cerebral palsy specific case report form (this is using a different permissible value list that overlaps and combines terms within the Imaging pulse sequency type CDE)	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2289-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2289-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2289-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2289-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58668	C58668	Intellectual impairment type	Type of intellectual impairment of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2691-C58506	C58506	IPAD application text	Text describing the type of iPad application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2197-C00028	C00028	Language spoken fluent ISO code	Code (ISO 639-2)for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2197-C00026	C00026	Language spoken Fluent text	Text for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2289-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F1016-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2291-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C00215	C00215	Living with person relationship type	Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2198-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2198-C22588	C22588	Location post-acute discharge type	Indicates the participant's/ subject's current location after discharge from the acute hospital	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2202-C22900	C22900	Manual Ability Classification System (MACS) - Level scale	The scale level related to the Mini-Manual Ability Classification System (MACS)	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2290-C22900	C22900	Manual Ability Classification System (MACS) - Level scale	The scale level related to the Mini-Manual Ability Classification System (MACS)	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F1016-C10975	C10975	Manual muscle testing anatomic site	The anatomic site of the muscle assessed during the performance of the manual muscle testing	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F1016-C10970	C10970	Manual muscle testing date and time	Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F1016-C10974	C10974	Manual muscle testing muscle score	The score the participant/subject achieved on the Manual Muscle Testing (MMT) for the particular muscle	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F1016-C18816	C18816	Manual muscle testing position other text	The free-text field related to 'Manual muscle testing position type' specifying other text. The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F1016-C10972	C10972	Manual muscle testing position type	The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2198-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2197-C22586	C22586	Maternal birth date	Date (and time, if applicable and known) the mother of the participant/subject was born	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.