CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59352 Surgery procedure tibial derotational osteotomy ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle tibial derotational osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C56309 NIH Toolbox Cognitive – Flanker inhibitory control and attention age 3 up raw score

The raw score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17474 Cardiovascular history cardiac surgery indicator

Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22102 Modified Ashworth Scale - Limb tone testing right wrist scale

The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59312 Surgery procedure gastrocnemius resection ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C53710 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time percentage value

Value of the Opposite Worlds Opposite World total time percentile band value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C58506 IPAD application text

Text describing the type of iPad application used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C14435 Nystagmus indicator

Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C12803 Gene variant or mutation implications confirmed mRNA analysis indicator

Whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C59360 Surgery procedure hindfoot arthrodesis ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle hindfoot arthrodesis surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C17483 Psychiatric history clinical anxiety diagnosis indicator

Indicator as to whether the participant/subject has had an anxiety diagnosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22845 Modified Ashworth Scale - Limb tone testing right toes scale

The scale of limb tone testing for the right toes, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09587 Brief Pain Inventory (BPI) - pain relations interference scale

Scale assessing how much the pain has interfered with relations with other people, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C00703 Tobacco use started age value

Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Supplemental Behavioral History Cerebral Palsy Cerebral Palsy
C59320 Surgery procedure anterior tibialis tendon transfer ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle anterior tibialis tendon transfer surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C53718 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct deviation from first count

Count of Code transmission total correct difference of the number of correctly identified targets from first (Version A) Code transmission total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C58566 Orthosis type other text

Text describing the presence of any other orthotic device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C14444 Muscle tone assessment abnormality indicator

Whether the muscle tone assessment found any abnormalities

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
Displaying 351 - 375 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.