CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 351 - 375 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14543 Genetic disorder type

Whether the participant/subject has a known single gene disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS)

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS)

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C17498 Hand preference before 12 month age indicator

Indicator as to whether the participant/subject had a hand preference before 12 months of age

Supplemental Motor Development History Cerebral Palsy Cerebral Palsy
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Core Physical Examination Cerebral Palsy Cerebral Palsy
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C18684 Health insurance other text

The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C10521 Hearing affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's hearing

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C58671 Hearing impairment indicator

Indicator of whether participant/subject has hearing impairment

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C58672 Hearing impairment severity type

Type of hearing impairment severity of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core Vital Signs Cerebral Palsy Cerebral Palsy
C01522 Height measurement

Measurement of participant's/subject's height

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C12669 Height or length measurement type

Type of height or length measurement taken

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C58657 Hemiplegia laterality type

Hemiplegia laterality of interest

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C08177 Hemorrhage indicator

Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22614 Home medical equipment other text

The free-text field related to Home medical equipment type' specifying other text. If the participant/ subject was provided with any home medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22613 Home modification durable medical equipment type

If the participant/ subject was provided with any home modification durable medical equipment, describes the type(s) of equipment received

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
Displaying 351 - 375 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.