CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2308-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09581	C09581	Brief Pain Inventory (BPI) - treatment received text	Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2291-C22887	C22887	Gait oxygen cost walking value	The metabolic cost of steady-state walking value (mL/kg/m)	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59314	C59314	Surgery procedure gastrocnemius resection left ankle type	Type of gastrocnemius resection surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2206-C08670	C08670	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency	Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58508	C58508	Dedicate speech generating device manufacturer name	Name of manufacturer of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22595	C22595	Therapy session type	The type of session in which the patient or client received therapy	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14438	C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20822	C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22672	C22672	Medical history behavior difficulty indicator	Indicator of whether participant/subject has/had behavior difficulties	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22643	C22643	Speech language pathology focus area social participation intervention type	The type of intervention used for social participation as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56326	C56326	NIH Toolbox Cognitive Dimensional change card sort age 3 up computed score	The computed score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C50680	C50680	Examiner name	The name of the person performing the exam	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59362	C59362	Surgery procedure hindfoot arthrodesis left ankle anatomic site	Anatomic site of hindfoot arthrodesis surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2308-C22847	C22847	Modified Ashworth Scale - Limb tone testing right shoulder muscle movement type	The type of the muscle movement of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09589	C09589	Brief Pain Inventory (BPI) - pain enjoyment interference scale	Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59322	C59322	Surgery procedure anterior tibialis tendon transfer left ankle type	Type of anterior tibialis tendon transfer surgical procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C10609	C10609	Hospitalization reason	Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58568	C58568	Dynamic upper extremity orthosis splint use anatomic site laterality type	Laterality type of dynamic upper extremity orthosis splints anatomic site used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C22618	C22618	Therapy session minute duration	The duration of the patient or client's treatment session in minutes	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14446	C14446	Muscle strength assessment anatomic site	Anatomic location of the muscle strength as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20835	C20835	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale	The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22680	C22680	Medical history checkup recommend interval complete indicator	Indicator of whether or not checkups were completed at recommended intervals	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.