CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22630 Speech language pathology focus area intervention duration

The duration of each focus area intervention in minutes, as part of the patient or client's speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22879 Imaging brain other atrophy diagnosis indicator

The indicator related to brain other region atrophy being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58658 Monoplegia laterality type

Monoplegia laterality of interest

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C56309 NIH Toolbox Cognitive – Flanker inhibitory control and attention age 3 up raw score

The raw score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C17474 Cardiovascular history cardiac surgery indicator

Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C00008 Age value

Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject

Supplemental Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C53710 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time percentage value

Value of the Opposite Worlds Opposite World total time percentile band value as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22071 Modified Ashworth Scale - Limb tone testing right elbow scale

The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09575 Brief Pain Inventory (BPI) - other pain indicator

Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C18946 Reflex plantar left response other text

The free-text field related to 'Reflex plantar left response result' specifying other text. The results from reflex plantar response on the left side

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59241 Surgery procedure rectus femoris release transfer left knee anatomic site

The free-text field related to the location of the left knee surgical rectus femoris release transfer procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58502 Communication devices category type

Type of category for all communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22616 Orthopedic surgeon follow-up care indicator

Indicator for follow-up care from an orthopedic surgeon

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C14431 Mental status examined type

Type of mental status assessment performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53637 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score

Value of Creature Counting Timing Score which is the total time (seconds) for correct items divided by TEAChCreatureCtngTotCorrCt (the Creature Counting Total correct count) as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22666 Medical history oropharyngeal dysphagia indicator

Indicator of whether the participant/subject has/had oropharyngeal dysphagia

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22637 Speech language pathology focus area augmentative alternative communication intervention type

The type of intervention used for augmentative and alternative communication (AAC) as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56439 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value

The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C56319 NIH Toolbox Cognitive – List scoring working memory age 7 up computed score

The computed score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59356 Surgery procedure tibial derotational osteotomy external right ankle anatomic site

Anatomic site of the surgical tibial derotational osteotomy external procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22106 Modified Ashworth Scale - Limb tone testing right ankle scale

The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
Displaying 301 - 325 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.