CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2015-C53700	C53700	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation from first count	Count of the Walk, don't Walk difference from First (Version A) Walk, Don't Walk total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12792	C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2203-C22657	C22657	Medical history recurrent pneumonia indicator	Indicator of whether the participant/subject has been diagnosed with recurrent pneumonia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F3051-C59340	C59340	Surgery procedure toe flexor lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle toe flexor lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2200-C22628	C22628	Face Legs Activity Cry Consolability (FLACC) - Consolability score	The score of the consolability portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22877	C22877	Imaging brain infarction diagnosis indicator	The indicator related to brain infarction being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2691-C58625	C58625	Communication device type use indicator	Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2016-C56305	C56305	NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C17472	C17472	Cardiovascular history arrhythmia ventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17497	C17497	Gait abnormal when began walking indicator	Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F3050-C59233	C59233	Surgery procedure semitendinosus transfer adductor magnus knee perform laterality type	Laterality type relative to the knee surgical semitendinosus transfer to adductor magnus procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2198-C00214	C00214	Living with persons count	Count of other people with whom the participant/subject currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2208-C22793	C22793	Vaccine history report informant specify type	The type of informant the vaccine history report was collected from	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58494	C58494	Bath device type other text	Text describing the presence of any other bathing device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2015-C53708	C53708	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time value	Value of the total time (seconds) taken to complete the Opposite World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1046-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2691-C12683	C12683	Mobility device type	Type for all mobility devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3051-C59348	C59348	Surgery procedure plantar fascia release ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle plantar fascia release surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2289-C22892	C22892	Corpus callosum agenesis status	The status related to agenesis (failure to develop) of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2308-C22071	C22071	Modified Ashworth Scale - Limb tone testing right elbow scale	The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F3042-C09575	C09575	Brief Pain Inventory (BPI) - other pain indicator	Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2203-C17480	C17480	Diabetes mellitus complications type	Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2294-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59241	C59241	Surgery procedure rectus femoris release transfer left knee anatomic site	The free-text field related to the location of the left knee surgical rectus femoris release transfer procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2198-C12819	C12819	Disability benefit indicator	Indicator of whether participant/subject receives disability benefit payments	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.