CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2016-C56288	C56288	NIH Toolbox Cognitive Cognition fluid composite fully adjusted scale score	The fully adjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3049-C59447	C59447	Passive range motion knee joint left side transmalleolar angle measurement value	Value of the left side knee joint transmalleolar angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2016-C56350	C56350	NIH Toolbox Cognitive Oral reading recognition english age 7 up age adjusted scale score	The age adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2290-C22619	C22619	Therapy bill unit service value	The total units of service billed for the patient or client's therapy treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2691-C12679	C12679	Mobility device use indicator	Whether the participant/subject uses a mobility device (e.g., wheelchair)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59260	C59260	Surgery procedure adductor lengthen open right hip anatomic site other text	The free-text field related to "Surgery procedure adductor open lengthen right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2015-C53664	C53664	Test of Everyday Attention for Children (TEA-Ch) - Score dual task age scaled count	Count of the Score dual task age scaled count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1305-C14702	C14702	Berg Balance Scale (BBS) - turn head scale	The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2289-C22866	C22866	Imaging magnetic resonance imaging date and time	The date and time related to the magnetic resonance imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2294-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2201-C19142	C19142	Activity type	The types of activities related to rehabilitation services	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F1046-C12791	C12791	Gene exon last deleted duplicated name	Name of the exon last deleted or duplicated	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53633	C53633	Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct percentage value	Value of Creature Counting total correct percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59308	C59308	Surgery procedure arthroplasty left hip perform type	Type of the surgical arthroplasty procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F1968-C56435	C56435	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56296	C56296	NIH Toolbox Cognitive Cognition total composition computed score	The total composite computed score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3049-C59455	C59455	Passive range motion ankle joint right side plantarflexion measurement value	Value of the right side ankle joint plantarflexion passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2060-C20810	C20810	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep sufficient assessment past week scale	The scale which represents how often the participant got enough sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2290-C22904	C22904	Physical therapy focus area type	The type related to physical therapy focus area	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2691-C56952	C56952	Crutch use type	Type of crutches which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59268	C59268	Surgery procedure psoas lengthen percutaneous right hip anatomic site other text	The free-text field related to "Surgery procedure psoas lengthen percutaneous right hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2015-C53699	C53699	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk B score	Score of the Walk, Don't Walk B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2814-C58671	C58671	Hearing impairment indicator	Indicator of whether participant/subject has hearing impairment	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2289-C22875	C22875	Imaging brain hemorrhage diagnosis indicator	The indicator related to brain hemorrhage being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2201-C22610	C22610	Communication device type	Type for all communication devices the participant/subject currently uses	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.