CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59409 Passive range motion hip joint right side extension measurement value

Value of the right side hip joint extension passive range of motion measurement

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C19769 Medical history pulmonary aspiration diagnosis indicator

Indicator of history of aspiration

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01553 Blood pressure measurement position type

Indicator of the participant/subject's position during the blood pressure measurement

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C22599 Therapy participant family caregiver count

The number of family members and/or caregivers participating in the treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56289 NIH Toolbox Cognitive – Cognition early childhood composite raw score

The raw score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C14130 Seizure focal classification type

The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C14695 Berg Balance Scale (BBS) - unsupport sit scale

The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C53666 Test of Everyday Attention for Children (TEA-Ch) - Score dual task percentage value

Value of the Score dual task Percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C17971 Hospitalization non surgical number

Number used to identify the non-surgical hospitalization being described

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58577 Eat drink assistive device type

Type of eating / drinking device currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59193 Gait profile score barefoot condition right value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the barefoot condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C22898 Occupational therapy therapist name

The name related to the occupational therapy therapist

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14460 Reflex assessment anatomic site

The location or category for reflex assessment of limbs

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C12663 Family history member with medical condition count

Count of family members with history of medical condition

Supplemental Family History Cerebral Palsy Cerebral Palsy
C18870 Mobility device other text

The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C53230 Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score count

Count of Sky Search attention score which is the TEAChSkySrchTimeTargetVal minus the number of correctly identified motor targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56346 NIH Toolbox Cognitive – Picture sequence memory age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56420 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid glasses used indicator

The indicator relating to whether the examine used his/her glasses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59338 Surgery procedure posterior tibialis lengthen left ankle type

Type of posterior tibialis lengthening surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C52422 Surgical history procedure neurological surgery type

Type of neurological surgery procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C58623 Number days week count

Count of days per week a stander used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59201 Gait profile score orthotic condition left value

Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the left side in the orthotic condition

Supplemental Gait Analysis Cerebral Palsy Cerebral Palsy
C18503 Assessment unable text

The free-text field to explain why there was no assessment of nystagmus performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59231 Surgery procedure hamstring lengthen open right knee anatomic site other text

The free-text field related to "Surgery procedure hamstring lengthen open right knee anatomic site" specifying other text

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
Displaying 251 - 275 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.