CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56426 Confidence interval level type

The level of confidence for the confidence interval

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59344 Surgery procedure toe flexor lengthen right ankle anatomic site

Anatomic site of the surgical toe flexor lengthening procedure performed on the right ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C58632 Access communication device type another body part specify text

Text describing the presence of another body part for type of access communication device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C00328 Prior traumatic injury type

General location of traumatic injury, if evidence of prior traumatic injury

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C18937 Muscle strength abnormality assessment other text

The free-text field related to 'Muscle strength abnormality assessment type' specifying other text. The muscle strength abnormality type

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59237 Surgery procedure patellar tendon shorten advance right knee type

Type of the surgical patellar tendon shortening/advancement procedure performed on the right knee

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C22788 Risk Factor Questionnaire (RFQ) - age 12-17 moderate physical activity indicator

Hours spent doing moderate physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep

Supplemental Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep Cerebral Palsy Cerebral Palsy
C58498 Transfer transportation device type other text

Text describing the presence of any other transfer/transportation device used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22612 Home modification provide indicator

Indicates if the participant/subject was provided with any home modifications

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C22911 Physical therapy orthoses type

The type of orthoses as related to the physical therapy

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C53633 Test of Everyday Attention for Children (TEA-Ch) - Creature counting total correct percentage value

Value of Creature Counting total correct percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20812 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep refresh assessment past week scale

The scale which represents how often the participant's sleep was refreshing in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22662 Medical history recurrent lower respiratory tract infection indicator

Indicator of whether the participant/subject has been diagnosed with recurrent lower respiratory tract infections

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22633 Speech language pathology focus area language expressive produce intervention type

The type of intervention used for expressive language and producing as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56435 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value

The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59352 Surgery procedure tibial derotational osteotomy ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle tibial derotational osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22102 Modified Ashworth Scale - Limb tone testing right wrist scale

The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C21106 Gait assessment result other text

The free-text field to specify the other result of the gait assessment

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C59312 Surgery procedure gastrocnemius resection ankle perform indicator

Indicator of whether the participant/subject has undergone the ankle gastrocnemius resection surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C08668 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence near farm fields indicator

Indicator as to whether the participant's/subject's first residence was located near farm fields (within 1/4mile)

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
C58506 IPAD application text

Text describing the type of iPad application used

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C19835 Pain indicator

Indicator of pain present

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14435 Nystagmus indicator

Involuntary movements of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C20820 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep trouble worry assessment past week scale

The scale which represents how often the participant worried about not being able to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
Displaying 251 - 275 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.