CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17464 Cardiovascular history abnormal echocardiogram left ventricular hypertrophy indicator

Indicator as to whether the participant/subject has or had an abnormal echocardiogram (ECG) specifically exhibiting left ventricular hypertrophy (LVH)

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C17472 Cardiovascular history arrhythmia ventricular tachycardia indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C17497 Gait abnormal when began walking indicator

Indicator as to whether the participant/subject had a gait abnormality at the time they began walking, as noted by parents or a physician

 Supplemental Motor Development History False Cerebral Palsy Cerebral Palsy
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

 Supplemental Social Status False Cerebral Palsy Cerebral Palsy
C12683 Mobility device type

Type for all mobility devices currently used by the participant/subject

 Supplemental External Devices - CP False Cerebral Palsy Cerebral Palsy
C17480 Diabetes mellitus complications type

Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C01012 Physical exam body system result type

Assessment result of each body system examined

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C12819 Disability benefit indicator

Indicator of whether participant/subject receives disability benefit payments

 Supplemental Social Status False Cerebral Palsy Cerebral Palsy
C10507 Genetic diagnosis confirmation type

Manner in which genetic diagnosis was confirmed

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C08529 36-item Short Form Health Survey (SF-36) - Times worn out score

Score of times feeling worn out during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C10541 Diabetes treatment type

Type of treatment the participant/subject is receiving or has received for diabetes mellitus

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C00005 Birth country name

Name for country where the participant/subject was born

 Core Demographics False Cerebral Palsy Cerebral Palsy
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging False Cerebral Palsy Cerebral Palsy
C14130 Seizure focal classification type

The type of focal epileptic seizures, considered to originate within networks limited to one hemisphere, which may be discretely localized or more widely distributed, and may originate in subcortical structures, experience by the participant/subject

 Supplemental Medical History False Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Demographics False Cerebral Palsy Cerebral Palsy
C00713 Drug or substance current illicit use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental-Highly Recommended Behavioral History False Cerebral Palsy Cerebral Palsy
C17971 Hospitalization non surgical number

Number used to identify the non-surgical hospitalization being described

 Supplemental Surgical and Hospitalization History False Cerebral Palsy Cerebral Palsy
C08507 36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score

Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
C18870 Mobility device other text

The free-text field related to 'Mobility device type' specifying other text. Type for all mobility devices currently used by the participant/subject

 Supplemental Rehabilitation Therapies - Episodes of care False Cerebral Palsy Cerebral Palsy
C18873 Gene mutation detected digenic result specify

The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected

 Supplemental-Highly Recommended Mutation Analysis False Cerebral Palsy Cerebral Palsy
C10972 Manual muscle testing position type

The position of the participant/subject when performing the Manual Muscle Testing (MMT) assessment

 Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale False Cerebral Palsy Cerebral Palsy
C12658 Clinical event or milestone achieved age value

Age when the participant/subject achieved the clinical event or milestone

 Core Motor Development History False Cerebral Palsy Cerebral Palsy
C18503 Assessment unable text

The free-text field to explain why there was no assessment of nystagmus performed

 Supplemental Neurological Examination False Cerebral Palsy Cerebral Palsy
C08515 36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator

Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory Short Form 36-Item Health Survey (SF-36) True Cerebral Palsy Cerebral Palsy
Displaying 176 - 200 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.