CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 151 - 175 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C14127	C14127	Seizure generalized classification type	The type of generalized epileptic seizures, considered to originate at some point within, and rapidly engage, bilaterally distributed networks and may include such bilateral networks as ortical and subcortical structures, but do not necessarily include the entire cortex, experienced by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2207-C17402	C17402	Site name	The name of the site for the study	Core	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2291-C14459	C14459	Reflex exam global assessment result	The global assessment of the ability and condition of reflexes	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2122-C08506	C08506	36-item Short Form Health Survey (SF-36) - Health limited climbing several stairs score	Score of surveyee-reported limited climbing several flights of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F1016-C10971	C10971	Manual muscle testing visit type	The type of visit at which the manual muscle testing was performed	Core	Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale	False	Cerebral Palsy	Cerebral Palsy
F2293-C10616	C10616	Clinical event or milestone achieved indicator	Indicator whether the participant/subject achieved or experienced the specific clinical event or milestone pertinent to the disease or disorder	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08514	C08514	36-item Short Form Health Survey (SF-36) - Less accomplished physical health indicator	Indicator for surveyee-reported less accomplishment as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F1305-C14695	C14695	Berg Balance Scale (BBS) - unsupport sit scale	The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2308-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C18938	C18938	Muscle weakness brain pattern other text	The free-text field related to 'Muscle weakness brain pattern type' specifying other text. Patterns describing weakness in location of brain	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2122-C08522	C08522	36-item Short Form Health Survey (SF-36) - Pain interfere work score	Score of bodily pain interfering with work (in home and outside) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2291-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F1305-C14703	C14703	Berg Balance Scale (BBS) - turn around scale	The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F1046-C12792	C12792	Gene whole deletion indicator	Whether the entire gene was deleted	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F3042-C09580	C09580	Brief Pain Inventory (BPI) - current pain rating scale	Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2206-C08669	C08669	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use indicator	Indicator as to whether the participant's/subject's first residence was located near pesticide spraying activities during the span of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F3042-C09588	C09588	Brief Pain Inventory (BPI) - pain sleep interference scale	Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C08018	C08018	Surgery age value	Age of the participant/subject at the time of the selected surgical procedure	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2291-C14445	C14445	Muscle tone assessment abnormality type	The muscle tone abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2201-C12679	C12679	Mobility device use indicator	Whether the participant/subject uses a mobility device (e.g., wheelchair)	Supplemental-Highly Recommended	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2292-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2295-C17402	C17402	Site name	The name of the site for the study	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy

Displaying 151 - 175 of 1249

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.