CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1305-C14696	C14696	Berg Balance Scale (BBS) - stand sit scale	The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2691-C58473	C58473	Mobility device use frequency type	Frequency type with which the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2203-C19058	C19058	Psychiatric history psychotic diagnosis other text	The free-text field related to 'Psychiatric history psychotic diagnosis type' specifying other text. Type of psychotic disorder the participant/subject has been diagnosed with, if any	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C12208	C12208	Gastrointestinal therapy nutrition supplement type	Type(s) of nutritional supplement(s) being taken by the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00026	C00026	Language spoken Fluent text	Text for each language that the participant/subject speaks fluently	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1305-C14704	C14704	Berg Balance Scale (BBS) - alternate foot step up scale	The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F2203-C17460	C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2203-C17468	C17468	Cardiovascular history arrhythmia bradycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of bradycardia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17402	C17402	Site name	The name of the site for the study	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F1968-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3042-C09577	C09577	Brief Pain Inventory (BPI) - worst pain rating scale	Scale indicating the rating of the worst pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2206-C08666	C08666	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence location type	Type describing the participant's/subject's first location of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2202-C06058	C06058	Pain problem grade	Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F1968-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3042-C09585	C09585	Brief Pain Inventory (BPI) - pain walking ability interference scale	Scale assessing how much the pain has interfered with walking ability, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C05108	C05108	Surgical or therapeutic procedure type	Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2291-C14442	C14442	Muscle bulk assessment abnormality type	The muscle bulk abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2201-C05134	C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2292-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C12678	C12678	Hospitalization non surgical total lifetime count	Count of the total number of times that the participant/subject has been hospitalized for a non-surgical reason	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08503	C08503	36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score	Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2201-C14289	C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.