CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2206-C08662	C08662	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence city text	Text specifying the participant's/subject's first city or town of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2291-C11026	C11026	Neuromuscular Exam Muscle weakness indicator	Indicator whether there is muscle weakness in the muscle or muscle group examined	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F1305-C14701	C14701	Berg Balance Scale (BBS) - retrieve floor object scale	The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Cerebral Palsy	Cerebral Palsy
F3042-C09581	C09581	Brief Pain Inventory (BPI) - treatment received text	Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2206-C08670	C08670	Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence pesticide use frequency	Frequency of pesticide spraying near the participant's/subject's first residence during the span of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2291-C14438	C14438	Motor exam global abnormality present indicator	Global assessment whether an abnormality was present following the motor exam	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Cerebral Palsy	Cerebral Palsy
F2015-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3042-C09589	C09589	Brief Pain Inventory (BPI) - pain enjoyment interference scale	Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Cerebral Palsy	Cerebral Palsy
F2292-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C10609	C10609	Hospitalization reason	Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2291-C14446	C14446	Muscle strength assessment anatomic site	Anatomic location of the muscle strength as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2201-C12682	C12682	Orthosis use indicator	Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2292-C00713	C00713	Drug or substance current illicit use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2207-C17971	C17971	Hospitalization non surgical number	Number used to identify the non-surgical hospitalization being described	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08507	C08507	36-item Short Form Health Survey (SF-36) - Health limited climbing one stair score	Score of surveyee-reported limited climbing one flight of stairs due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2203-C17465	C17465	Cardiovascular history abnormal echocardiogram other text	Text description of any abnormal characteristics other than left ventricular hypertrophy (LVH), or decreased left ventricular (LV) function that the participant/subject has ever exhibited on an echocardiogram (ECG)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2203-C17473	C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17498	C17498	Hand preference before 12 month age indicator	Indicator as to whether the participant/subject had a hand preference before 12 months of age	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2198-C00215	C00215	Living with person relationship type	Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2203-C05460	C05460	Seizure indicator	Indicator of seizure activity	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2691-C12684	C12684	Mobility device type use indicator	Indicator whether the participant/subject currently uses the selected types of mobility device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2203-C17482	C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.