CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22877 Imaging brain infarction diagnosis indicator

The indicator related to brain infarction being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58656 Cerebral palsy distribution primarily unilateral type

Type of CP distribution primarily unilateral subtype experienced by the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C22793 Vaccine history report informant specify type

The type of informant the vaccine history report was collected from

Supplemental Vaccination History Cerebral Palsy Cerebral Palsy
C53708 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time value

Value of the total time (seconds) taken to complete the Opposite World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59302 Surgery procedure proximal femoral resection left hip anatomic site

Anatomic site of the surgical proximal femoral resection procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59449 Passive range motion ankle joint type

Type of ankle joint passive range of motion

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C59262 Surgery procedure psoas lengthen hip perform indicator

Indicator of whether the participant/subject has undergone the hip psoas lengthening surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22892 Corpus callosum agenesis status

The status related to agenesis (failure to develop) of the median sagittal section of the brain

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58664 Cerebral palsy fine motor function type

Type of fine motor function as indicated by the Bimanual Fine Motor Function (BFMF) scale

Supplemental-Highly Recommended Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C54616 Brief Test of Executive Function Adult Version (BRIEF A) - Form version name

Name of the form version used, as part of the Brief Test of Executive Function Adult Version (BRIEF A)

Supplemental Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A) Cerebral Palsy Cerebral Palsy
C53716 Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct percentage value

Value of the Code transmission total correct percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C53641 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score deviation from first count

Count of the Creature Counting timing score difference from First (Version A) Creature Counting timing score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59310 Surgery procedure arthroplasty left hip perform type other text

The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text

NeuroRehab Supplemental-Highly Recommended Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59208 Surgery procedure anterior hemi epiphyseodesis knee perform indicator

Indicator of whether the participant/subject has undergone the knee anterior hemi-epiphyseodesis surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Knee Cerebral Palsy Cerebral Palsy
C56954 Dynamic upper extremity orthosis splint use frequency type

Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59270 Surgery procedure open psoas lengthen left hip anatomic site

Anatomic site of the open surgical psoas lengthening procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C56326 NIH Toolbox Cognitive – Dimensional change card sort age 3 up computed score

The computed score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C50680 Examiner name

The name of the person performing the exam

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59362 Surgery procedure hindfoot arthrodesis left ankle anatomic site

Anatomic site of hindfoot arthrodesis surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22847 Modified Ashworth Scale - Limb tone testing right shoulder muscle movement type

The type of the muscle movement of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59322 Surgery procedure anterior tibialis tendon transfer left ankle type

Type of anterior tibialis tendon transfer surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C58568 Dynamic upper extremity orthosis splint use anatomic site laterality type

Laterality type of dynamic upper extremity orthosis splints anatomic site used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22618 Therapy session minute duration

The duration of the patient or client's treatment session in minutes

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C20835 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep awaken trouble sleep again assessment past week scale

The scale which represents how often the participant woke up and had trouble falling back to sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.