CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2016-C56318	C56318	NIH Toolbox Cognitive List scoring working memory age 7 up raw score	The raw score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2198-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C54618	C54618	Brief Test of Executive Function Adult Version (BRIEF A) - Scale index raw score	Raw score of the selected scale or index, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F1968-C56435	C56435	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value	The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3053-C59182	C59182	Acetabular index left measurement	The measurement in degrees of the left acetabular index	Supplemental	Pelvic Radiographs	False	Cerebral Palsy	Cerebral Palsy
F3050-C59210	C59210	Surgery procedure anterior hemi epiphyseodesis left knee type	Type of anterior hemi-epiphyseodesis surgical procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F3052-C59272	C59272	Surgery procedure psoas lengthen open left hip anatomic site other text	The free-text field related to "Surgery procedure psoas lengthen open left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2814-C58675	C58675	Respiratory ventilation support assist other type text	Text describing another type of respiratory ventilation or support assist used by participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2200-C22593	C22593	Communication Function Classification System level type	The level of the patient assigned by the Communication Function Classification System (CFCS)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54630	C54630	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F1968-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3054-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3050-C59218	C59218	Surgery procedure distal femoral extension osteotomy right knee type	Type of distal femoral extension osteotomy surgical procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58479	C58479	Orthosis laterality type	Laterality type of orthoses used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59280	C59280	Surgery procedure varus derotational osteotomy proximal femur hip perform indicator	Indicator of whether the participant/subject has undergone the hip varus derotational osteotomy of proximal femur surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22602	C22602	Therapy week frequency	The weekly frequency of the patient or client's treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C19836	C19836	Pain anatomic site text	Anatomic Site of body pain	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22601	C22601	Therapy participant other text	Text describing the any other people participating in the therapy session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53219	C53219	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets percentage value	Value of the Sky Search percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F1968-C56410	C56410	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design T score	The T score converted from the raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58487	C58487	Static lower extremity stretch orthosis splint use anatomic site	Anatomic site of the static lower extremity stretching orthosis/splints use	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59288	C59288	Surgery procedure hip pelvic osteotomy perform indicator	Indicator of whether the participant/subject has undergone the hip pelvic osteotomy surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22899	C22899	Gross Motor Function Classification System (GMFCS) - Level scale	The scale level as reference to the Gross Motor Function Classification System (GMFCS)	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C22651	C22651	Medical history sensori-neural indicator	Indicator of whether the participant/subject has been affected by sensori-neural impairment	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2295-C19247	C19247	Subject ID	Subject identification ID	Core	Vital Signs	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.