CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3052-C59250	C59250	Surgery procedure adductor lengthen hip perform type	Type of hip adductor lengthening surgical procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F1968-C56444	C56444	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 expected score	The Full Scale IQ score for all four subtests that the subject was expected to receive, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2289-C22873	C22873	Imaging brain region anatomic site	The anatomic site related to region of brain for imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F1968-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56315	C56315	NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F3052-C59298	C59298	Surgery procedure open reduction left hip perform type other text	The free-text field related to "Surgery procedure open reduction left hip perform type" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2015-C53714	C53714	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct count	Count of Code transmission number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3049-C59445	C59445	Passive range motion knee joint left side thigh foot angle measurement value	Value of the left side knee joint thigh-foot angle passive range of motion measurement	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2599-C21924	C21924	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest total raw score	Total raw score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53218	C53218	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets age scaled count	Count of the Sky Search age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2289-C22881	C22881	Imaging brain scar gliosis diagnosis indicator	The indicator related to brain scarring gliosis being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58660	C58660	Timing injury abnormality type	Type as related to the point in time of injury or abnormality	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2293-C22886	C22886	Delay acquisition language communication milestone indicator	The indicator related to the subject having delayed acquisition of language or communication milestones, diagnosed be a physician	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F1968-C56409	C56409	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score	The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2308-C22100	C22100	Modified Ashworth Scale - Limb tone testing right hip scale	The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C18949	C18949	Sensory system modalities affected other text	The free-text field related to 'Sensory system modalities affected type' specifying other text. The type and location of the sensory receptor activated by a stimulus plays the primary role in coding the stimulus modality	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59244	C59244	Surgery procedure rectus femoris release transfer right knee anatomic site	The free-text field related to the location of the right knee surgical rectus femoris release transfer procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58504	C58504	Speak communication device type	Type for all speaking communication devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2291-C14433	C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2016-C56351	C56351	NIH Toolbox Cognitive Oral reading recognition english age 7 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2203-C22668	C22668	Medical history neurogenic detrusor indicator	Indicator of whether participant/subject has a neurogenic detrusor	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22639	C22639	Speech language pathology focus area assessment intervention type	The type of intervention used for assessments as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59358	C59358	Surgery procedure tibial derotational osteotomy internal left ankle anatomic site	Anatomic site of the tibial derotational osteotomy internal procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.