CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2197-C22586	C22586	Maternal birth date	Date (and time, if applicable and known) the mother of the participant/subject was born	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2015-C53699	C53699	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk B score	Score of the Walk, Don't Walk B score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C22656	C22656	Medical history bronchopulmonary dysplasia indicator	Indicator of whether the participant/subject has been diagnosed with bronchopulmonary dysplasia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2599-C21910	C21910	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest item score	Item score calculated as a number of correct trials, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22627	C22627	Face Legs Activity Cry Consolability (FLACC) - Cry score	The score of the cry portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22876	C22876	Imaging brain edema diagnosis indicator	The indicator related to brain edema being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58655	C58655	Cerebral palsy distribution type	Type of condition distribution (spasticity subtype) experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56304	C56304	NIH Toolbox Cognitive Picture vocabulary age 3 up age adjusted scale score	The age adjusted scale score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2208-C22792	C22792	Vaccines received indicator	Indicates whether participant/subject received the vaccine	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53707	C53707	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total deviation excess five percent cutoff value	Value of the Opposite Worlds Same World total time difference in excess of 5 percent cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59301	C59301	Surgery procedure proximal femoral resection hip laterality type	Laterality type relative to the hip surgical proximal femoral resection procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59261	C59261	Surgery procedure adductor lengthen neuronectomy hip laterality type	Laterality type relative to the hip neuronectomy surgical adductor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22891	C22891	Corpus callosum dysplasia status	The status related to dysplasia of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58663	C58663	Cerebral palsy gross motor function type	Type of gross motor function as indicated by the Gross Motor Function Classification System (GMFC) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56316	C56316	NIH Toolbox Cognitive ? Flanker inhibitory control and attention age 3 up fully adjusted scale score	The fully adjusted scale score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2235-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53715	C53715	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct age scaled count	Count of the Code transmission total correct age scaled number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2291-C21107	C21107	Gait abnormality assessment other text	The free-text field for other type of abnormal gait	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59313	C59313	Surgery procedure gastrocnemius resection ankle laterality type	Laterality type relative to the ankle surgical gastrocnemius resection procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58507	C58507	Android application text	Text describing the type of Android application used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2202-C21117	C21117	Subject name	Name of subject/participant	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14436	C14436	Nystagmus type	Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2060-C20821	C20821	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime worry assessment past week scale	The scale which represents how often the participant felt worried at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2203-C22671	C22671	Medical history abnormal sleep EEG indicator	Indicator of whether a participant/subject has/had an abnormal sleep EEG	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22642	C22642	Speech language pathology focus area education school intervention type	The type of intervention used for education and school as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.