CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 24 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F1046-C12798	C12798	Gene missense nonsense variant or point mutation location type	Type of location of the missense/nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C17894	C17894	Gene missense nonsense variant or point mutation location intron text	Text about missense/nonsense variant or point mutation at the intron	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2197-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1046-C12800	C12800	Gene missense nonsense variant or point mutation insertion deletion type	The insertion deletion type of the missense/nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12808	C12808	Gene sequenced with no variant or mutation indicator	Whether there are additional genes sequenced with no variants or mutations detected	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12783	C12783	Variant mutational analysis results available indicator	Whether the variant or mutational analysis results are available on this participant/ subject	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12784	C12784	Variant mutational analysis performed family member indicator	Whether the mutational analysis was performed on a family member	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12801	C12801	Gene point mutation nonsense variant codon type	Type of nonsense variant or point mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C17896	C17896	Variant mutational analysis not performed reason	Why the mutational analysis was not performed	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2197-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1046-C12785	C12785	Gene variant mutation detected result type	Type of gene variant or mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12802	C12802	Gene variant or mutation mRNA analysis performed indicator	Whether messenger ribonucleic acid (mRNA) analysis was performed	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12944	C12944	Variant mutational analysis performed indicator	Whether the variant or mutational analysis was performed on the participant/subject	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12803	C12803	Gene variant or mutation implications confirmed mRNA analysis indicator	Whether the messenger ribonucleic acid (mRNA) analysis confirmed implications of genetic analysis	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C17889	C17889	Gene missense nonsense variant or point mutation location exon text	Text about missense/nonsense variant or point mutation at the exon	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C18874	C18874	Gene variant or mutation category other text	The free-text field related to 'Gene variant or mutation category', specifying other text. Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12787	C12787	Gene variant or mutation category	Category of the variant or mutation detected on the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12795	C12795	Gene coding region sequenced indicator	For missense/nonsense variant or point mutations or pseudoexons, whether the entire coding region was sequenced for the allele of the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C12804	C12804	Gene cDNA variant or mutation name	The Human Genome Organisation (HUGO) variant or mutation nomenclature of the complementary deoxyribonucleic acid (cDNA) variant or mutation	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C17890	C17890	Allele number one missense nonsense variant or point mutation subclass information type	Type of missense/nonsense variant or point mutation subclass information, first allele number one	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F1046-C18875	C18875	Gene targeted variant or mutational analysis other text	The free-text field related to 'Gene targeted variant or mutational analysis type', specifying other text. Type of targeted variant or mutational analysis performed for the gene	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2207-C05106	C05106	Surgical therapeutic procedure start date and time	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2204-C12663	C12663	Family history member with medical condition count	Count of family members with history of medical condition	Supplemental	Family History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.