CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1151 - 1175 of 1249

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Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2203-C17482	C17482	Diabetes mellitus indicator	Indicator as to whether the participant/subject has diabetes mellitus (type I or type II)	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1046-C12794	C12794	Gene promoter deletion indicator	Whether known gene promoters were deleted	Supplemental	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C10514	C10514	Genetic diagnosis point mutation result	The result of the genetic testing revealed a point mutation describe the position and amino acid change	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2292-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2203-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08505	C08505	36-item Short Form Health Survey (SF-36) - Health limited carrying groceries score	Score of surveyee-reported limited lifting or carrying groceries due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2291-C14450	C14450	Muscle weakness brain pattern type	Patterns describing weakness in location of brain	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2203-C10543	C10543	Cancer head or neck radiation treatment indicator	Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F1968-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2292-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental-Highly Recommended	Behavioral History	False	Cerebral Palsy	Cerebral Palsy
F2122-C08513	C08513	36-item Short Form Health Survey (SF-36) - Cut time on work activities physical health indicator	Indicator for surveyee-reported cut down time on work or other activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)	Exploratory	Short Form 36-Item Health Survey (SF-36)	True	Cerebral Palsy	Cerebral Palsy
F2203-C14536	C14536	Seizure diagnosis method type	Describes how the diagnosis of seizure was established	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F0950-C11964	C11964	Tardieu Scale relative velocity rate	The relative velocity (for a repeated measure) during administration of the Tardieu Scale assessment to measure muscle reaction through evaluation of spasticity and resistance to passive limb movement in a participant/subject	Exploratory	Tardieu Scale	False	Cerebral Palsy	Cerebral Palsy
F2204-C17402	C17402	Site name	The name of the site for the study	Core	Family History	False	Cerebral Palsy	Cerebral Palsy
F2691-C12682	C12682	Orthosis use indicator	Whether the participant/subject uses orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2294-C01010	C01010	Physical exam date and time	Date (and time if applicable and known) physical exam was performed	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F2235-C08088	C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2198-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2206-C08663	C08663	Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text	Text specifying the participant's/subject's first state of residence	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	False	Cerebral Palsy	Cerebral Palsy
F2295-C01550	C01550	Temperature measurement anatomic site	Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2201-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2198-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2295-C12669	C12669	Height or length measurement type	Type of height or length measurement taken	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy

Displaying 1151 - 1175 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.