CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1026 - 1050 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17474 Cardiovascular history cardiac surgery indicator

Indicator as to whether the participant/subject has had cardiac surgery or mechanical intervention

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00226 Health insurance type

Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10970 Manual muscle testing date and time

Date (and time, if applicable and known) the Manual Muscle Testing (MMT) was performed

Core Manual Muscle Testing-Using the Medical Research Council Muscle Grading Scale Cerebral Palsy Cerebral Palsy
C12686 Orthosis type use indicator

Indicator whether the participant/subject currently uses the selected types of orthosis

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C17483 Psychiatric history clinical anxiety diagnosis indicator

Indicator as to whether the participant/subject has had an anxiety diagnosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Examination Cerebral Palsy Cerebral Palsy
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C14694 Berg Balance Scale (BBS) - unsupport stand scale

The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C08531 36-item Short Form Health Survey (SF-36) - Times tired score

Score of times feeling tired during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Exploratory Short Form 36-Item Health Survey (SF-36) Cerebral Palsy Cerebral Palsy
C58471 ADL device use indicator

Indicator of whether the participant/subject uses any ADL (activities of daily living) devices

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C06058 Pain problem grade

Grade for the pain problem that indicates whether the person is describing their worst pain problem, their second worst pain problem, or their third worst pain problem

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C18961 Genetic disorder other text

The free-text field related to 'Genetic disorder type' specifying other text. Whether the participant/subject has a known single gene disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C10556 Pregnant ever indicator

Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Demographics Cerebral Palsy Cerebral Palsy
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C14543 Genetic disorder type

Whether the participant/subject has a known single gene disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core General Core Cerebral Palsy Cerebral Palsy
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
C17466 Cardiovascular history arrhythmia atrial fibrillation indicator

Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of atrial fibrillation

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Core Social Status Cerebral Palsy Cerebral Palsy
C09575 Brief Pain Inventory (BPI) - other pain indicator

Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form

Supplemental Brief Pain Inventory (BPI) Short Form Cerebral Palsy Cerebral Palsy
C08664 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence zip code number

Number specifying the participant's/subject's first zip code of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Cerebral Palsy Cerebral Palsy
Displaying 1026 - 1050 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.