CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58504 Speak communication device type

Type for all speaking communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C14433 Cranial nerves global assessment result

The condition of Cranial Nerves

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53639 Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score percentage value

Value of Creature Counting timing score percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C20818 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale

The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22668 Medical history neurogenic detrusor indicator

Indicator of whether participant/subject has a neurogenic detrusor

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22639 Speech language pathology focus area assessment intervention type

The type of intervention used for assessments as part of the speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56441 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval upper bound value

The upper bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C56321 NIH Toolbox Cognitive – List scoring working memory age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C59358 Surgery procedure tibial derotational osteotomy internal left ankle anatomic site

Anatomic site of the tibial derotational osteotomy internal procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22843 Modified Ashworth Scale - Limb tone testing right fingers scale

The scale of limb tone testing for the right fingers, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59318 Surgery procedure achilles tendon lengthen left ankle type

Type of achilles tendon lengthening surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C58512 Access communication device type

Type for all access communication devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22599 Therapy participant family caregiver count

The number of family members and/or caregivers participating in the treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C20828 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale

The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22676 Medical history disruptive behavior disorder indicator

Indicator of whether participant/subject has disruptive behavior disorder

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C53217 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets count

Count of Sky Search number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56330 NIH Toolbox Cognitive – Dimensional change card sort age 3 up fully adjusted scale score

The fully adjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C56408 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning raw score

The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)

Supplemental Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Cerebral Palsy Cerebral Palsy
C59366 Surgery procedure calcaneal osteotomy left ankle type

Type of calcaneal osteotomy surgical procedure performed on the left ankle

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C22851 Modified Ashworth Scale - Limb tone testing right wrist muscle movement type

The type of the muscle movement of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C59326 Surgery procedure anterior tibialis tendon transfer right ankle split anatomic site

Anatomic site of the anterior tibialis tendon transfer right ankle split surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Ankle Cerebral Palsy Cerebral Palsy
C58572 Dynamic lower extremity stretch orthosis splint use anatomic site laterality type

Laterality type of dynamic lower extremity stretching orthosis splints anatomic site used by participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C22629 Therapy factor influence session type

The type of factor(s) that influenced the treatment session

Supplemental Occupational Therapy Treatment Session: Cerebral Palsy Cerebral Palsy Cerebral Palsy
C14454 Cerebellar or coordination assessment type

Type of cerebellar/coordination assessment performed

Supplemental Neurological Examination Cerebral Palsy Cerebral Palsy
C53225 Test of Everyday Attention for Children (TEA-Ch) - Sky search time target value percentage value

Value of the Sky Search time per target percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
Displaying 101 - 125 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.