CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 101 - 125 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2599-C21917	C21917	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward longest string score	Score is longest string that was repeated exactly in reverse order, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F2200-C22628	C22628	Face Legs Activity Cry Consolability (FLACC) - Consolability score	The score of the consolability portion as part of the Face, Legs, Activity, Cry, Consolability scale (FLACC)	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2289-C22877	C22877	Imaging brain infarction diagnosis indicator	The indicator related to brain infarction being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58656	C58656	Cerebral palsy distribution primarily unilateral type	Type of CP distribution primarily unilateral subtype experienced by the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2016-C56305	C56305	NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2208-C22793	C22793	Vaccine history report informant specify type	The type of informant the vaccine history report was collected from	Supplemental	Vaccination History	False	Cerebral Palsy	Cerebral Palsy
F2015-C53708	C53708	Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds opposite world total time value	Value of the total time (seconds) taken to complete the Opposite World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59302	C59302	Surgery procedure proximal femoral resection left hip anatomic site	Anatomic site of the surgical proximal femoral resection procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59449	C59449	Passive range motion ankle joint type	Type of ankle joint passive range of motion	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F3052-C59262	C59262	Surgery procedure psoas lengthen hip perform indicator	Indicator of whether the participant/subject has undergone the hip psoas lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22892	C22892	Corpus callosum agenesis status	The status related to agenesis (failure to develop) of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58664	C58664	Cerebral palsy fine motor function type	Type of fine motor function as indicated by the Bimanual Fine Motor Function (BFMF) scale	Supplemental-Highly Recommended	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2235-C54616	C54616	Brief Test of Executive Function Adult Version (BRIEF A) - Form version name	Name of the form version used, as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53716	C53716	Test of Everyday Attention for Children (TEA-Ch) - Code transmission total correct percentage value	Value of the Code transmission total correct percentile band of number of correctly identified targets as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2015-C53641	C53641	Test of Everyday Attention for Children (TEA-Ch) - Creature counting timing score deviation from first count	Count of the Creature Counting timing score difference from First (Version A) Creature Counting timing score as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59310	C59310	Surgery procedure arthroplasty left hip perform type other text	The free-text field related to "Surgery procedure arthroplasty left hip perform type" specifying other text	NeuroRehab Supplemental-Highly Recommended	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3050-C59208	C59208	Surgery procedure anterior hemi epiphyseodesis knee perform indicator	Indicator of whether the participant/subject has undergone the knee anterior hemi-epiphyseodesis surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C56954	C56954	Dynamic upper extremity orthosis splint use frequency type	Frequency type with which the participant/subject uses their dynamic upper extremity orthosis/splints, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59270	C59270	Surgery procedure open psoas lengthen left hip anatomic site	Anatomic site of the open surgical psoas lengthening procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C56997	C56997	Neonatal brain injury pattern classification	The National Institute of Child Health and Human Development (NICHD) Neonatal Research Network (NRN) classification of neonatal brain injury	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58673	C58673	Respiratory ventilation support assist indicator	Indicator of whether respiratory support and ventilation assistance of the participant/subject	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2200-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2235-C54628	C54628	Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Negativity scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavioral Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56281	C56281	NIH Toolbox Cognitive Cognition crystallized composite national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2015-C53654	C53654	Test of Everyday Attention for Children (TEA-Ch) - Map mission count	Count of number of Misson Map targets correctly identified as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.