CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2291-C14461	C14461	Reflex assessment limb result	The results from reflex limb assessment	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F1968-C51670	C51670	School name	The name of the school that the subject currently attends, if applicable	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56283	C56283	NIH Toolbox Cognitive Cognition fluid composite raw score	The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2201-C22614	C22614	Home medical equipment other text	The free-text field related to Home medical equipment type' specifying other text. If the participant/ subject was provided with any home medical equipment, describes the type(s) of equipment received	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2015-C53657	C53657	Test of Everyday Attention for Children (TEA-Ch) - Map mission percentage value	Value of Mission Map percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2060-C20814	C20814	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep problem assessment past week scale	The scale which represents how often the participant had a problem with sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Sleep Disturbance	True	Cerebral Palsy	Cerebral Palsy
F2200-C22635	C22635	Speech language pathology focus area swallow dysphagia oral feed intervention type	The type of intervention used for swallowing, dysphagia, and/or oral feeding as part of the speech and language therapy treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3051-C59339	C59339	Surgery procedure posterior tibialis lengthen right ankle type	Type of posterior tibialis lengthening surgical procedure performed on the right ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2207-C52433	C52433	Surgical history procedure bony orthopedic surgery type	Type of bony orthopedic surgery	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58624	C58624	Transfer transportation device type use indicator	Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59202	C59202	Gait profile score orthotic condition right value	Value of the clinical index, Gait Profile Score (GPS) that is used to describe the gait pathology on the right side in the orthotic condition	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2015-C53222	C53222	Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation excess five percent cutoff count	Count of Sky Search of difference of the number of correctly identified targets in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3050-C59232	C59232	Surgery procedure semitendinosus transfer adductor magnus knee perform indicator	Indicator of whether the participant/subject has undergone the knee semitendinosus transfer to adductor magnus surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2198-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F3052-C59296	C59296	Surgery procedure open reduction left hip perform type	Type of the surgical open reduction procedure performed on the left hip	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3049-C59443	C59443	Passive range motion knee joint left side Ely Test measurement value	Value of the left side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)	Supplemental	Lower Extremity Passive Range of Motion Physical Exam	False	Cerebral Palsy	Cerebral Palsy
F2599-C21921	C21921	Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subset response text	Participant response, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest	Supplemental-Highly Recommended	Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV)	True	Cerebral Palsy	Cerebral Palsy
F3052-C59256	C59256	Surgery procedure adductor lengthen open hip laterality type	Laterality type relative to the hip open surgical adductor lengthening procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22879	C22879	Imaging brain other atrophy diagnosis indicator	The indicator related to brain other region atrophy being diagnosed from imaging	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2814-C58658	C58658	Monoplegia laterality type	Monoplegia laterality of interest	Supplemental	Participant Condition Characteristics	False	Cerebral Palsy	Cerebral Palsy
F2293-C19247	C19247	Subject ID	Subject identification ID	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2200-C19835	C19835	Pain indicator	Indicator of pain present	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F3052-C59304	C59304	Surgery procedure proximal femoral resection left hip anatomic site other text	The free-text field related to "Surgery procedure proximal femoral resection left hip anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F3052-C59264	C59264	Surgery procedure psoas lengthen percutaneous hip laterality type	Laterality type relative to the hip surgical psoas lengthening percutaneous procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2289-C22894	C22894	Corpus callosum anterior status	The status related to anterior median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.