CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1249
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20836 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale

The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Sleep Disturbance Cerebral Palsy Cerebral Palsy
C22681 Medical history difficulty schedule attend healthcare appointment indicator

Indicator of whether or not there was difficulty scheduling/attending healthcare appointments

Exploratory Medical History Cerebral Palsy Cerebral Palsy
C53222 Test of Everyday Attention for Children (TEA-Ch) - Sky search correct identified targets deviation excess five percent cutoff count

Count of Sky Search of difference of the number of correctly identified targets in excess of 5% cut-off as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C56337 NIH Toolbox Cognitive – Pattern comparison processing speed age 7 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C19836 Pain anatomic site text

Anatomic Site of body pain

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C22601 Therapy participant other text

Text describing the any other people participating in the therapy session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C56291 NIH Toolbox Cognitive – Cognition early childhood composite unadjusted scale score

The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C53669 Test of Everyday Attention for Children (TEA-Ch) - Score dual task deviation from first count

Count of the Score dual task difference from First (Version A) Score dual task count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C58487 Static lower extremity stretch orthosis splint use anatomic site

Anatomic site of the static lower extremity stretching orthosis/splints use

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C59288 Surgery procedure hip pelvic osteotomy perform indicator

Indicator of whether the participant/subject has undergone the hip pelvic osteotomy surgical procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22899 Gross Motor Function Classification System (GMFCS) - Level scale

The scale level as reference to the Gross Motor Function Classification System (GMFCS)

Supplemental Physical Therapy Individual Session Cerebral Palsy Cerebral Palsy
C22651 Medical history sensori-neural indicator

Indicator of whether the participant/subject has been affected by sensori-neural impairment

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

Core Vital Signs Cerebral Palsy Cerebral Palsy
C59039 Surgical procedure orthopedic hip type

Type of orthopedic surgical hip procedure

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22622 Wong-Baker FACES - Pain rating scale

This scale uses faces and corresponding numbers to indicate the amount of pain the subject feels

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22870 Imaging brain abnormal indicator

The indicator related to brain abnormalities as seen on imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C56299 NIH Toolbox Cognitive – Cognition total composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery

Supplemental NIH Toolbox Cognitive Battery Cerebral Palsy Cerebral Palsy
C53702 Test of Everyday Attention for Children (TEA-Ch) - Opposite worlds same world total time value

Value of the total time (seconds) taken to complete the Same World test of the Opposite Worlds test as related to the Test of Everyday Attention for Children (TEA-Ch) assessment

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C59296 Surgery procedure open reduction left hip perform type

Type of the surgical open reduction procedure performed on the left hip

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C59443 Passive range motion knee joint left side Ely Test measurement value

Value of the left side knee joint Ely Test passive range of motion measurement in degrees or denoted by a (+) or (-)

Supplemental Lower Extremity Passive Range of Motion Physical Exam Cerebral Palsy Cerebral Palsy
C21921 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subset response text

Participant response, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Supplemental-Highly Recommended Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Cerebral Palsy Cerebral Palsy
C59256 Surgery procedure adductor lengthen open hip laterality type

Laterality type relative to the hip open surgical adductor lengthening procedure undergone by participant/subject

Supplemental Lower Extremity Orthopedic Surgical Procedures - Hip Cerebral Palsy Cerebral Palsy
C22630 Speech language pathology focus area intervention duration

The duration of each focus area intervention in minutes, as part of the patient or client's speech and language therapy treatment session

Supplemental Speech and Language Therapy Treatment Session Cerebral Palsy Cerebral Palsy
C22879 Imaging brain other atrophy diagnosis indicator

The indicator related to brain other region atrophy being diagnosed from imaging

Supplemental Neuroimaging Cerebral Palsy Magnetic Resonance Imaging Cerebral Palsy Cerebral Palsy
C58658 Monoplegia laterality type

Monoplegia laterality of interest

Supplemental Participant Condition Characteristics Cerebral Palsy Cerebral Palsy
Displaying 51 - 75 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.