CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2235-C54630	C54630	Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale protocol classification category	Category of the protocol classification for the value collected under 'Brief Test of Executive Function Adult Version (BRIEF A) - Infrequency scale score', as part of the Brief Test of Executive Function Adult Version (BRIEF A)	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56283	C56283	NIH Toolbox Cognitive Cognition fluid composite raw score	The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2015-C53657	C53657	Test of Everyday Attention for Children (TEA-Ch) - Map mission percentage value	Value of Mission Map percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3054-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3050-C59218	C59218	Surgery procedure distal femoral extension osteotomy right knee type	Type of distal femoral extension osteotomy surgical procedure performed on the right knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2691-C58479	C58479	Orthosis laterality type	Laterality type of orthoses used by participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3052-C59280	C59280	Surgery procedure varus derotational osteotomy proximal femur hip perform indicator	Indicator of whether the participant/subject has undergone the hip varus derotational osteotomy of proximal femur surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Hip	False	Cerebral Palsy	Cerebral Palsy
F2290-C22602	C22602	Therapy week frequency	The weekly frequency of the patient or client's treatment session	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2203-C19836	C19836	Pain anatomic site text	Anatomic Site of body pain	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22601	C22601	Therapy participant other text	Text describing the any other people participating in the therapy session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2016-C56291	C56291	NIH Toolbox Cognitive Cognition early childhood composite unadjusted scale score	The unadjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2015-C53669	C53669	Test of Everyday Attention for Children (TEA-Ch) - Score dual task deviation from first count	Count of the Score dual task difference from First (Version A) Score dual task count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58617	C58617	Mobility device use propel type	Propel type the participant/subject uses their mobility device(s), if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59195	C59195	Gait cadence barefoot condition measurement	Count of the steps per minute in the barefoot condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2202-C22900	C22900	Manual Ability Classification System (MACS) - Level scale	The scale level related to the Mini-Manual Ability Classification System (MACS)	Supplemental	Occupational Therapy Treatment Session: Cerebral Palsy	False	Cerebral Palsy	Cerebral Palsy
F2291-C14462	C14462	Reflex plantar right response result	The results from reflex plantar response on the right side	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59225	C59225	Surgery procedure hamstring lengthen percutaneous left knee anatomic site other text	The free-text field related to "Surgery procedure hamstring lengthen percutaneous left knee anatomic site" specifying other text	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2015-C53621	C53621	Test of Everyday Attention for Children (TEA-Ch) - Sky search attention score percentage value	Value of Sky Search attention score percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2016-C56348	C56348	NIH Toolbox Cognitive Oral reading recognition english age 7 up computed score	The computed score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F1968-C56422	C56422	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid assist listen device used indicator	The indicator relating to whether the examinee used his/her assisted listening device during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59340	C59340	Surgery procedure toe flexor lengthen ankle perform indicator	Indicator of whether the participant/subject has undergone the ankle toe flexor lengthening surgical procedure	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58625	C58625	Communication device type use indicator	Indicator whether the participant/subject currently uses the selected types of transfer/transportation devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59203	C59203	Gait velocity orthotic condition measurement	Value of the speed measured in meters per second in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C18932	C18932	Cranial nerves global assessment other text	The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59233	C59233	Surgery procedure semitendinosus transfer adductor magnus knee perform laterality type	Laterality type relative to the knee surgical semitendinosus transfer to adductor magnus procedure undergone by participant/subject	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.