CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3054-C59198	C59198	Gait orthosis type text	The free-text field related to the type of orthoses currently used by the participant/subject	Supplemental	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F2291-C14466	C14466	Sensory system global assessment result	The condition and ability of sensory system	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3050-C59228	C59228	Surgery procedure hamstring lengthen open left knee anatomic site	Anatomic site of the surgical hamstring lengthening open procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2016-C56281	C56281	NIH Toolbox Cognitive Cognition crystallized composite national age adjusted percentage value	The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2691-C58489	C58489	Seat lie position device type	Type of seated or lying position device currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2015-C53654	C53654	Test of Everyday Attention for Children (TEA-Ch) - Map mission count	Count of number of Misson Map targets correctly identified as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F3051-C59343	C59343	Surgery procedure toe flexor lengthen left ankle anatomic site	Anatomic site of the surgical toe flexor lengthening procedure performed on the left ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2691-C58631	C58631	Position device type use indicator	Indicator whether the participant/subject currently uses the selected types of positioning devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F3054-C59206	C59206	Gait stride length orthotic condition right measurement	Value of the distance measured in meters from heel contact to heel contact on the right foot in the orthotic condition	Supplemental-Highly Recommended	Gait Analysis	False	Cerebral Palsy	Cerebral Palsy
F3050-C59236	C59236	Surgery procedure patellar tendon shorten advance left knee type	Type of the surgical patellar tendon shortening/advancement procedure performed on the left knee	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Knee	False	Cerebral Palsy	Cerebral Palsy
F2016-C56289	C56289	NIH Toolbox Cognitive Cognition early childhood composite raw score	The raw score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2205-C22787	C22787	Risk Factor Questionnaire (RFQ) - age 12-17 vigorous physical activity indicator	Hours spent doing vigorous physical activities by the subject in an average week between the ages of 12 and 17, as part of the Risk Factor Questionnaire (RFQ)- Physical Activity and Sleep	Supplemental	Risk Factor Questionnaire (RFQ) - Physical Activity and Sleep	False	Cerebral Palsy	Cerebral Palsy
F2691-C58497	C58497	Transfer transportation device type	Type for all transfer/transportation devices currently used by the participant/subject	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2290-C22910	C22910	Physical therapy assistive technical device type	The type of assistive technical device as related to the physical therapy	Supplemental	Physical Therapy Individual Session	False	Cerebral Palsy	Cerebral Palsy
F2015-C53666	C53666	Test of Everyday Attention for Children (TEA-Ch) - Score dual task percentage value	Value of the Score dual task Percentile band as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C22661	C22661	Medical history laryngomalacia indicator	Indicator of whether the participant has been diagnosed with layrngomalacia	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22595	C22595	Therapy session type	The type of session in which the patient or client received therapy	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy
F2308-C22101	C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2291-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F3051-C59242	C59242	Surgical procedure orthopedic ankle type	Type of orthopedic surgical procedure of the ankle	Supplemental	Lower Extremity Orthopedic Surgical Procedures - Ankle	False	Cerebral Palsy	Cerebral Palsy
F2016-C56297	C56297	NIH Toolbox Cognitive Cognition total composition unadjusted scale score	The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery	Supplemental	NIH Toolbox Cognitive Battery	False	Cerebral Palsy	Cerebral Palsy
F2691-C58505	C58505	Speak communication device type other text	Text describing the presence of any other type of speaking communication device used	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2015-C53700	C53700	Test of Everyday Attention for Children (TEA-Ch) - Walk-don't walk deviation from first count	Count of the Walk, don't Walk difference from First (Version A) Walk, Don't Walk total correct count as related to the Test of Everyday Attention for Children (TEA-Ch) assessment	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2203-C22669	C22669	Medical history recurrent urinary tract infect	Indicator of whether participant/subject has/had recurrent urinary tract infections	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2200-C22603	C22603	Therapy month frequency	The monthly frequency of the patient or client's treatment session	Supplemental	Speech and Language Therapy Treatment Session	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.